Archive for category ‘Chemical Sensitivity, MCS‘

Environmental Diseases: To understand or ignore

This is Eva’s contribution about the cinema published in the magazine Delirio that she has translated into English. The script about toxics and Multiple Chemical Sensitivity is entitled “Rear Window” and it’s a tribute to the great filmmaker Alfred Hitchcock. The photos, as usual, are made by David Palma.

Eva recommends this number of the magazine Delirio dedicated to the cinema because you will find amazing photographs and illustrations.

Rear Window

By Eva Caballé

The room is almost empty; nothing but a bed and an old bedside table without any decor or curtain, all in light colors. It seems calm and quiet. The woman sits on the edge of the bed in front of the window, looking at the sunlight, which is orange because of the sunset. She has a quick look out the window and then observes more carefully, stretching her neck as if she is looking for something. She turns and talks to the young woman who has just entered the room with an ironic and concerned smile.

Woman: Don’t you see how everybody is disappearing? It is no coincidence! They started to spray the park, day after day, while children were playing, and parents and grandparents sat in the sun chatting while watching them.

The young woman puts her hand to her waist with a tired look and responds, gesturing with her other hand, while she snorts, implying that she is tired of talking always about the same thing.

Young woman: You only see conspiracies; for you all is very simple. How can you be so sure if you hardly leave home? When you live through your window! Instead of spending hours writing pamphlets that I’m sure nobody reads, and taking pictures, shouldn’t you focus on your next book?

The woman’s expression becomes serious and she turns angry replying with some indignation.

Woman: But it’s obvious! It doesn’t take Sherlock Holmes! The dog of the first floor neighbors died a few days after the first fumigation. They say that he was intoxicated by something that he ate… A few days ago an ambulance took the old woman who lives upstairs in the middle of the night and she is still hospitalized, when in the 40 years I have lived here I had never seen her having a cold! And what about the children on the fourth floor? (She takes a break to breathe because she speaks so fast that she is even short of breath.) Every day I see them with their bronchodilators and every other minute in the ER! Their neighbor has cancer and since she’s having chemotherapy she can no longer tolerate perfumes and now she has to wear a mask when she walks along the street. (Now almost shouting.) They say that she has Multiple Chemical Sensitivity (MCS) and doctors don’t pay attention to her!

The woman makes faces parodying the young woman’s lecture that she already expects and knows by heart.

Young woman: You are a bit alarmist! There are only a few people who suffer from MCS; there is no need to worry. Today almost everyone has allergies or asthma. Authorities warn us that one out of every four people will have cancer in their lifetime. (Goes back and speaks from the doorway leaning on the door frame.) This is the modern life. We all have to die of something!

The woman turns and answers indignant from the bed.

Woman: And does it seem normal to you? Really? And when this affects you, will you still think the same?

The young woman finally leaves the room and her voice is heard from the hallway with a tone between weary and sarcastic.

Young woman: Well, see you next week. Do not keep on spying on your neighbors because you will end up crazy. You should amuse yourself and don’t fantasize anymore.

The woman answers raising her voice while the young woman closes the front door and leaves the house.

Woman: Don’t worry, my attitude has no solution. (And finishes angrily talking to herself.) And neither does your stupidity.

The woman is still staring out the window with indignation and with a worried face and thinks aloud.

Woman: Does anyone realize? I see everything so clearly that it scares me. Makes me want to open the window and shout it from the rooftops, but will anyone hear me? Why don’t they listen even when you alert them? (With a sarcastic tone.) Having no time and the fast pace of life sounds like cheap excuse to me. (She stands up and gets closer to the window.) It’s simple. We’ve become worse than donkeys, because it is not needed to put blinders on us to not look beyond the established road. We no longer have the instinct to do it! We are afraid of what we might see, lest we have to react. (The sun has set and she begins to close the blind.) It must be that I have no fear of looking or I have nothing to lose. It must be that my window is different…

Author: Eva Caballé, No Fun Blog, February 2011

Original article: LA VENTANA INDISCRETA, artículo sobre tóxicos y Sensibilidad Química Múltiple publicado en la revista DELIRIO

German Version at CSN Blog: Umweltkrankheiten: Hinschauen oder wegsehen?

More articles written by Eva Caballé:

Hamburg hospital offers rooms for patients with MCS and environmental illness

After much effort, the Agaplesion Diakonie Hospital in Hamburg, Germany has designed two rooms for people with MCS and multiple allergies. For many years, local support groups have worked tirelessly to try to integrate environmentally controlled hospital rooms in the hospital. For the first time ever, it is possible for people who suffer from environmental illnesses or severe allergies to be in a hospital for medical treatment which is tailored to their health issues.

Environmental rooms for MCS, the environmentally ill, and multiple allergic patients

Since February 2011, with the move into the newly built Agaplesion DIAKONIE Medical Center in Hamburg (formerly the hospitals, Old Oaks, and Bethany Elim), for the first time, a hospital has two special pollutant free rooms prepared for those with environmental allergies, and MCS patients. The special environmental rooms have been built with much care. They consist of a single and a double room. Both rooms are connected by a vestibule from the other station areas separated so that chemical-sensitive patients do not come in contact with the usual hospital chemicals and fragrances from other patients.

Medical treatment, surgery, obstetrics

The Agaplesion Clinic offers the two environmental rooms which have been specially prepared for the treatment of patients in the medical environment including the following hospital departments in the with an integrated spectrum:

  • Internal Medicine
  • Geriatrics (geriatric medicine)
  • Diabetes
  • Surgery, Hand Surgery, Plastic Surgery
  • Gynecology, Obstetrics
  • Orthopedics
  • Anasthesia, Intensive Care

Criteria for inclusion in Environmental Room

There is a briefing which takes place through a doctor or the emergency room. During the first contact a message states that the patient wants a shot in the environmental room. The Agaplesion Clinic requires patients have medical evidence showing MCS (multiple chemical sensitivity), environmental allergies / intolerance (allergy multi-) and / or a present a chronic intoxication in the patient. A MCS and / or allergy passport is also useful to explain the need for inclusion in a special room environment.

Core Unit of the Environment Room

Rooms in conventional hospitals are not suitable for chemically sensitive patients. In general, the wards have PVC flooring and particleboard furniture. The environmental rooms in the Agaplesion Clinic have given much effort to create a plan that recognizes the needs of MCS sufferers with good air quality issues. The two environmental rooms were built with the low emission of air pollutants / safe building materials and furnishings, to ensure the safety for hypersensitive patients.

Some examples of the special features of the environmental room:

  • Walls and ceilings with running Fermacell Green Line plates
  • Massive exterior walls are lime
  • Walls and ceilings painted with lime paint
  • Rooms are equipped with a wall heater
  • Floor is made of ceramic tiles.
  • Window and door frames are insulated with hemp
  • Doors are made of glass
  • Exposure to electromagnetic fields has been reduced, including through the installation of power circuit breakers
  • Furniture is made of enamel, metal, or stainless steel

The clinic staff shall ensure low-emission patient care:

  • Attention is given to see if there are fragrance-containing and damaging products in patient vicinity.
  • Patients are asked about their possible food intolerances to allergies, to drugs, disinfectants, medicines and anesthetics.
  • A dietitian takes into account the patients’ food intolerances
  • At the medical station information is summarized, and this can be viewed at any time by medical staff.
  • The staff of the station is working together very closely with the support group „environmental illnesses MCS + CFS.”
  • The room environment is cleaned with fragrance free detergents, but a disinfecting cleaning is essential to neutralize odors, so the patient is offered the use of effective microorganisms (EM 1).
  • When necessary, patients may bring their own food which is kept in a refrigerator at the door. A kettle is also available there.
  • The bedding of the entire hospital is fragrance-free but these patients are permitted to bring their own bedding.

Special measures for the benefit of environmental patients

  • The use of fragrance-free and low-polluting products is offered to patients and their visitors
  • The use of cell phones and smoking are not permitted in this area
  • Living together requires all patients in the environmental room practice understanding, respect and helpfulness

Hospital life – side note

Important information for environmental patients and their physicians, that the Agaplesion Clinic is a hospital and not an environmental clinic. In a hospital procedures are regulated and special requests cannot be met. The Agaplesion Clinic breaks new ground by providing the two environmental rooms. The employees are trained on MCS and environmental illness, but they are dependent on cooperation between the patients, so that a smooth clinical work can be guaranteed. Perhaps at first patients won’t have the highest satisfaction, but patients should be understanding and possibly contribute constructive suggestions for improvement since this is the first attempt at providing environmentally safe rooms in a hospital. It is important for patients with chemical sensitivity (MCS) to realize that this is a new development at the clinic. For those with hyper-sensitivities, a stay at the hospital, despite careful selection of materials, initially may be fraught with problems because of outgassing and ecological matters.

The Chemically Sensitive are thankful for their commitment

The MCS support groups in Hamburg, which for years pursued the goal of a “MCS-friendly hospital room in a hospital” give hearty thanks and appreciation to the doctors, hospital planners, architects and government agencies that were involved in this project. All the best and much success for the safe environment in the new rooms at the Agaplesion Clinic!

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, 1 March 2011

Translation: Christi Howarth

Literature:

Agaplesion Diakonie Hospital Hamburg, newsletter: environmental rooms for MCS patients and the environment / multiple allergies, January 2011

Contact:

Agaplesion DIAKONIE Hospital Hamburg

Hohe Weide 17, 20259 Hamburg, Germany, Tel: (040) 7 90 20 – 0, Fax (040) 7 90 20 – 10 79, E-mail: info@dkh.de, Internet: www.dkh.de

Further CSN articles about MCS:

The Spanish Professional Association of Naturopathy has given an honorary title to Eva Caballé for her work, courage, and dedication to face Multiple Chemical Sensitivity

Because of my Multiple Chemical Sensitivity, I’ve been forced to live in isolation. My contact with the outside world has become exclusively virtual and time goes by in a different way.

Five years sick, three years since I was diagnosed with Multiple Chemical Sensitivity, two years and a half since No Fun was born, one year and a half as a contributor at the art magazine Delirio, slightly over one year since my book Desaparecida (Missing) was released and almost one year as a regular contributor at The Canary Report and as an sporadic contributor at the blog of the German MCS Association CSN – Chemical Sensitivity Network. At present, No Fun has more than 400 subscribers, it has at least 600 visits a day (these days thanks to the MCS Report on TV the visits have been triplicate), it has more than 280 posts and it has almost 2.500 comments that give an inestimable value to the blog. Desaparecida (Missing) is sold in six Spanish-speaking countries and you can find it in 17 Spanish Public and University libraries.

But paradoxically, all this seems unreal to me; a little more than numbers or statistics. Only once in a while something happens that makes me realize that what I do has a real impact on the outside world and also reaches people beyond the circle of MCS.

A few months ago Marcos Ve’lez, the president of A.P.E.N.B. (the Spanish Professional Association of Naturopathy) contacted me, and his words surprised and touched me deeply. They had been following my work for a long time, had also read my book, and wanted to give me their support because as Natural Health professionals they also defend justice in health care with less pharmaceuticals interests and a higher value for people who have lost their health.

He informed me that the Board of A.P.E.N.B. had unanimously agreed on several points, including the following:

  • They give me an Honorary Title for “my work, courage, and dedication to face Multiple Chemical Sensitivity”. The award of the diploma (in the picture) was a public event last December, but as you can imagine I wasn’t able to go to the presentation.
  • They open a section entitled Desaparecida at the Association’s website section “CAUSES”.
  • The Association promotes all my work and initiatives and they have a section for my MCS articles.
  • This is the first one: La condena de la Sensibilidad Química Múltiple
  • They link the blog No Fun in the section called “FRIENDS” on their website.
  • They include Desaparecida in the section of “RECOMMENDED BOOKS” on their website.

Obviously all this recognition is an honor to me and I appreciate very much the support of the Natural Health professionals, especially because we all are in the same struggle. To make MCS visible is very positive for two reasons: to win MCS awareness and to spread the message that is implicit in MCS: We must change the direction of our world because it’s already too late, so it is necessary to say clearly and as loud as we can that our modern lifestyle is an act of suicide that we are already paying and that we will pay for generations to come.

Thanks A.P.E.N.B., and thanks to Marcos for helping us spread this message.

Original post at No Fun:

More about the work of Eva Caballé:

Participatory Action: Help Your Local Santa Claus and the Sick Children in Your Area


A Real Santa Claus Does Not Wear Perfume

Santa has an ear for the needs of all children, including children with allergies, asthma and chemical sensitivity (MCS). Santas are always open to hear everything a child desires, meaning their secrets, worries and concerns. For many children this seasonal private talk with Santa is an important event when they can privately disclose what is really on their mind.

So this year we wish that all children, including those who suffer from allergies, asthma and chemical sensitivity (MCS), will have the opportunity to whisper something special into Santa’s ear. We have designed an action card for printing. (The best way to print the cards out is on more solid paper or light cardboard).

And because Santa Claus is known for really loving ALL children, with some help, we can make sure every Santa Claus may share the Christmas warmth with every child. Hand the Santa a Christmas card, asking them to give up after-shave, cologne, fabric softener, strong smelling deodorant, and other fragrances this season. Whisper in the ear of the Santa Claus when presentating the card, that this small favor of being fragrance free will make all children’s hearts and eyes glow with gratitude.

ACTION CARD >>>

The real Santa Claus does not wear perfume, because he loves all children. Even those with asthma, allergies, or chemical sensitivity.

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Spanish Action Card >> El verdadero Papá Noel no usa Colonia

German Action Card >> Der echte Weihnachtsmann trägt kein Parfüm

Facts about Perfume, Scented Products:

New trailer for upcoming film about Multiple Chemical Sensitivity is shown at MCS conference in Spain

Two weeks ago I introduced you the first trailer for the upcoming short film Los pájaros de la mina (The Birds in a mine), the first film made in Spain about Multiple Chemical Sensitivity, which was very well received between MCS sufferers from all around the world.

Today I want to share with you the new and powerful trailer for the film. This new trailer had its debut last week at the MCS conference organized by ASQUIFYDE, which was held at the University of Alicante, Spain. During the three days of the conference, a lot of doctors, lawyers and other specialists talked about MCS, toxics, the situation in Spain, etc. It was really great and we could follow the presentations and discussions on the Internet.

Also presented at the conference was an Environmental Control Guide (my blog No Fun is part of it) together with my video “MCS: The importance of reducing the toxic load”, which, according to Francisca Gutierrez, president of ASQUIFYDE, made a big impression on the conference attendees (medical students, press and other people related with environmental health).

For the closure of the conference, the new trailer was shown. The scriptwriter and lead actress in the film, Mariam Felipe, was there to explain the project and about how the idea for the film was sparked because of my interview on Carne Cruda (Raw Meat) one year ago. And then they showed this amazing new trailer.

The premiere of the film will be December 10th at the Teatro Principal de Pontevedra.

According to the filmmaker, Víctor Moreno, they will make a version with English subtitles, and, thanks to Silvia K. Müller, president of CSN, another version with German subtitles will be made, too.

I’m sure that this film will win a lot of awards!!

Author: Eva Caballé, No Fun Blog, November 10, 2010

Further Articles from Eva Caballé: