Archive for category ‘Clinical Diagnostics‘

Study Shows That Nearly Half of Children with Food Allergies Experience Bullying

Parents and pediatricians should routinely ask children with food allergy about bullying

NEW YORK – Nearly half of children diagnosed with food allergies who participated in a recent study are bullied, according to researchers at the Icahn School of Medicine at Mount Sinai. One third of those bullied specifically due to their food allergy. Almost eight percent of children in the U.S. are allergic to foods such as peanuts, tree-nuts, milk, eggs, and shellfish.

Nearly half of parents surveyed (47.9 percent) were not aware of the bullying—although both the bullied children and their parents reported experiencing higher stress levels and lower quality of life.

The study, titled, “Child and Parental Reports of Bullying in a Consecutive Sample of Children with Food Allergy,” appears in the online issue of Pediatrics on December 24. The study was led by Eyal Shemesh, MD, Associate Professor of Pediatrics and Psychiatry at the Icahn School of Medicine at Mount Sinai.  Dr. Shemesh and his team surveyed 251 pairs of parents and children. The patient and parent pairs were consecutively recruited during allergy clinic visits to independently answer questionnaires. Bullying due to food allergy or for any cause, quality of life, and distress in both the child and parent were evaluated using validated questionnaires.

“Parents and pediatricians should routinely ask children with food allergy about bullying,” said Dr. Shemesh. “Finding out about the child’s experience might allow targeted interventions, and would be expected to reduce additional stress and improve quality of life for these children trying to manage their food allergies.” Dr. Shemesh is Director of EMPOWER (Enhancing, Managing, and Promoting Well-being and Resiliency), a program within Mount Sinai’s Jaffe Food Allergy Institute. Dr. Shemesh is also Chief of the Division of Behavioral and Developmental Health in the Department of Pediatrics at The Mount Sinai Medical Center.

“When parents are aware of the bullying, the child’s quality of life is better,” said the senior author, Scott H. Sicherer, MD, Professor of Pediatrics, Chief, Division of Pediatric Allergy, Co-Director, EMPOWER program. “Our results should raise awareness for parents, school personnel, and physicians to proactively identify and address bullying in this population.”

Author: Mount Sinai, Researchers Survey Shows That Nearly Half of Children with Food Allergies Experience Bullying, December 24, 2012

The study, titled, “Child and Parental Reports of Bullying in a Consecutive Sample of Children with Food Allergy,” appears in the online issue of Pediatrics.

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Damn, I do not accept that my life is over!

Let me live!

Patrick is 19. His American football gear is in his closet, and in the corner of his room his electric guitar lays on the shelf next to the brilliant lyrics he wrote. His songs have a meaning, not just modified, banal versions of some well-worn songs that were eventually on the top of the charts. No way. Patrick’s music gets down to business and strongly suggests that the songwriter is not a wimp, but instead confident and that he has something significant to say. When Patrick wrote the songs/music, he went to high school, which earlier posed no problem for him, and he enjoyed a life outside of school as well. His buddies were always with him. Life then was to be lived! But now the American football equipment, the guitar, the unfinished recordings, and song books remain on the dusty shelves.

Those were the times

When Patrick lies on his bed in his room it seems like decades since he was with his band buddies on the stage. Sometimes he has flashbacks where he again sees the faces of the girls in front row of the stage, glowing, looking reverently up and so moved by the band’s damn good music. When these flashbacks return, Patrick is reminiscent of the life he used to live. Patrick would like to scream really loud so everyone can hear:

“My body and my pain hold me prisoner. I cannot leave and live like others. A broken body makes me a cripple. It forces me to not always do things that I would like to do. But I want to live.”

Causes and effects

Patrick is sick from chemicals and his body has developed an extreme form of chemical sensitivity (MCS). Some chemicals have the capacity to sensitize the body. In medicine, this is well known that some chemicals like formaldehyde, isocyanates, and some pesticides are able to cause illness. Everything has played a role in Patrick’s current condition. His father was a chemist and had 30 years of contact with chemicals which are capable of damaging genes. No one can define precisely the effects of the countless years of exposures from the not so harmless chemical cocktails where Patrick’s father worked. The fact is, that Patrick’s father, because of work-related health issues, no longer has his health and is seriously ill. Perhaps the house where the family lived also played a role in the illness. Seven times they had high water which left mold on the walls. The walls were washed extensively with chlorine, a highly toxic chemical. Also the wood preservatives in the house could have played a part in Patrick’s state of health.

Others have lived at least

The average age of people who are chemically sensitive, is from 35-45 years, according to studies. There are also sufferers who are much older and some who are still toddlers, but the majority of sufferers had a life before MCS. For Patrick, it’s different:

“Excuse me, I don’t want to offend the others, but the other MCS sufferers were allowed to enjoy prior life experiences (youth, school, training, travel, friends, partnership, etc.), but I was denied everything from the beginning. The best time of life, my youth, has not been granted to me. On the contrary, I am going through hell, but no one is interested, because they do not believe me.”

Ciao buddy

After Patrick broke down completely, the compassion of his buddies and classmates was just great. They came to visit him and provided him with information from school. That gave him the opportunity to continue his school for awhile. When that was no longer possible, he tried getting his education on the internet, via a correspondence school. But now that is over. No more calls, no more visits. Patrick experiences unbearable pain as he feels like he too is covered in dust like his guitar. The girlfriend he had whom he wanted to build a life with, now also lives a life without him, perhaps with someone else. Patrick experiences pain on another level besides just the excruciating physical pain of the illness. He is furious and says:

“I cannot believe that since I’m not out there, I must not be forgotten and do not exist. My struggle must not be in vain.”

“It is hard to accept that everything I have achieved to this point is destroyed.”

“I have resigned myself that I will probably always remain living alone. There is no compassion for this disease. In fact, on the contrary, I am immediately excluded. What girl or young woman is prepared to make such a sacrifice, and how will I even find a person when I need to live a life of isolation? Forget it. This also applies to other friendships as well. ”

“Although various people helped me earlier, now only two friends remain – I’ve always given everything and now … I’m just dropped, since I cannot keep up and have become too annoying or too complicated to all the others.”

To go out at least once

Besides all the bad luck Patrick and his parents experienced in the past, they also lost their most faithful companion too. So Patrick’s mother bought a new dog so that her son has some life in the house and finds some comfort through the love of an animal. The decision was good for the dog and he is very fond of Patrick:

“As much as I would love to be in nature for a couple of hours with our dog for training or just playing only with him, I am not even granted this.”

Simply cut the strings and let the frustration out

If Patrick was frustrated, it was hard to miss. He grabbed his guitar and the sparks were flying as he sang until the walls shook. That has not happened often, but when it did, everyone in the house knew after two minutes. Music is life and a way to express yourself, to let out what the mind has suppressed. But even allowing the frustration and the anger to be let out, is no longer possible for Patrick:

“Playing guitar and singing means so much to me, but my damn body does not even allow that. The muscle weakness and pain again slow me down, and of course, my dream of American football is over.”

MCS means in the worst stage of a “life” in total isolation

Patrick is one of the MCS patients who having a life outside the four walls is impossible. It should not be confused that these people do not want to be, among others, but on the contrary, the wish and desire to do something with other people remains every day around the clock. It is not a psychological problem or fear of people. The body simply gives up when exposed to chemicals. Car exhaust, heater exhaust gases, perfumed people, houses, from which wafts the cleaning products. All chemical cocktails present a difficulty for chemically sensitive people to have a chance to move about.

A short contact with the outside world means having extreme pain, seizures, difficulty breathing, collapse, or unconsciousness. The same applies for visiting. If someone comes to visit, the joy for Patrick can quickly lead to disaster. The deodorants or residues from the dry cleaners in the jacket, fabric softeners, which cannot be totally washed out will make the visit impossible. Utter nonsense? Not at all. Who will make the effort to find appropriate ingredients for “everyday products” that will bring about severe consequences for a man whose body is hypersensitive? What companies will makes the effort to accommodate hypersensitive individuals as they produce products? Not even most doctors will attempt to understand this chemical hypersensitivity. This is due partly out of ignorance, because they have never heard of the disease, and simply because they lack time to investigate further. And if doctors are not smart and declare the disease as a quirk of convenience, how can ordinary people understand those with MCS?

Patrick’s opinion on MCS:

“MCS is the worst disease out there; sometimes I wish I was a paraplegic. I know this sounds harsh, but I would not be so isolated, left alone, not credible, and would have no pain. I could travel in spite of this handicap, going almost everywhere, going to concerts, meeting friends, and possibly make training, and, and. “

The whole family is ruined

Patrick’s parents are willing to do anything for their son, so he can have his life back. But MCS is too complex to just fight the disease with medicine and a few natural remedies. One must start by establishing a clean living environment. Patrick and his father would need a living space that is chemical-and mold-free as much as possible. But how do you implement that? The house in which they have is hard to change due to the financial loss due to his father’s illness.

Help from authorities? No

Patrick should actually have a good case for the authorities to help, but because he has no education, there is no funding, no basic security, which is humiliating for the young man. His mother says:

“We get help from nowhere, in fact, it is quite the opposite. We are harassed by authorities and they make demands on Patrick which he cannot satisfy. Anyone who can count to three must see that. But nobody takes the trouble to look at the misery, instead, decisions are made that are devoid of any humanity. Yes, Patrick virtually exists only on the card. This illness ruined my two men and those who might know how to help and change things for us, look away too easily! ”

“Many people ask me, how has this total isolation been for over the last two years? They say to me, “I would go mad …. I would go crazy … I imagine the bad, and, and …” They also ask, “Where does Patrick, or where do you get the strength to keep going?”

The response from Patrick’s mother: “You can see that Patrick lives and we also manage. Somehow we are probably fighting spirits and do what we try to be bold, brave, and strong willed to survive. The struggle for justice makes us stronger. “That’s what Patrick’s mother says to the outside world, but inside she often thinks, how long does will the body last, like the heart muscle. Every day she must be available around the clock for her men. Every day is actually a struggle for survival, for Patrick, as well as his father.

Optional: a human decision

That which was given to Patrick and his parents since March 2009, is staggering. His parents submitted an application to determine his level of disability. Now a court ruling says that the 19-year-old man who is suffering from unbearable pain all day, and reactions to chemicals must go into a hospital. The hospital has assured the court that it is equipped for emergencies so there shouldn’t be any problems.

  • What if he’s there and collapses completely? Who bears the responsibility for him then?
  • Who pays to stay in a hospital environment abroad, because in Germany there is no help?
  • Can a normal emergency procedure help him to bounce back?
  • What if not?

There are no environmentally controlled hospitals for MCS patients in Germany. No hospitals can assure a complete freedom from chemical exposures at all. The hospital rooms discussed in a previous CSN article which are in Hamburg for the environmentally ill, are still not in full operation and they are also only for medical intervention, not for environmental treatment. Thus Patrick’s health would possibly be further compromised by this current court ruling the way it now stands.

So far, instead of support costs caused

Administrative expenses have already cost a fortune for Patrick, a 19 year old, with unbroken will to live. Legally, there is the possibility of seriously ill people remaining in their homes, and being examined within the safety of their own four walls. For Patrick, allowing this would be an act of humanity. This young man wants nothing more than for his disability to be determined. His disability and disease are detected nowhere better than in his own home where everyone can see with their own eyes what the illness actually means for Patrick and his family.

Authors: Silvia Müller and K. Kira, CSN – Chemical Sensitivity Network, 9 July 2011

Translation: Christi Howarth

Note: Patrick’s documents are complete before CSN.

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Causes of mildew in the house

Construction and other influences which promote the growth of mold

Mold needs nutrients and moisture to grow. As always, building nutrients are present and readily available in various forms, but the moisture in a building will play a crucial role. The moisture threshold is about 70% and below relative humidity at the surface which no growth from mold to materials will occur. As the moisture content increases so will the likelihood of mold growth. At 80% relative humidity at the surface, the growing conditions for almost all indoor air mold species are reached. At even higher surface moisture all mold and bacteria can grow. However it must be noted that the growth conditions of humidity and temperature cannot be considered separately, since the position of the minimum and optimum moisture can move at different temperatures. The minimum values of relative humidity which are necessary for germination or mycelium growth can be achieved only at optimal temperatures. When these optimal temperatures are there, germination or mycelial growth takes place only at higher humidity.

Conditions for mold growth

In addition to the interaction of moisture and temperature, the pH range for growth of mold is also important. The optimum growth range is between pH 5 and pH 7, taking into account that some species of mold grow are in a pH range from 2 to 11. Wallpaper and paint, for example, often have a pH of 5 to 8. Calcareous materials, like plaster for example, or concrete can have pH values above 12. Nevertheless, even then there can be mold growth if, for example, thin biofilms were formed on the material. This medium is due to dust or trapped grease, deposits, etc. available in sufficient quantity on all component surfaces.

Mold is formed only under certain conditions

Basically, mold growth can occur only if the above growth conditions are met. Moisture plays a significant role. This is important to note that hot air – with the same relative humidity – contains more moisture than cold air. This moisture can come from the structure itself or introduced by the room users.

The factors that may be responsible for increased moisture in the building can be summarized as follows:

  • Inadequate insulation and low heat storage
  • Thermal bridges
  • Increased heat transfer resistance
  • Insufficient or inadequate heating
  • Increased production of moisture in the interior
  • Inadequate or improper ventilation
  • Poor moisture buffering of building materials
  • Moisture in the building construction
  • Thermal bridging, insulation

In winter the building can be well dried at low temperatures by venting the air. The cold outside air is heated in the apartment and takes on additional moisture that is transported with the fan to the outside. On the other hand, it can be critical in warm humid places in the apartment to cool the air. For example, this is important in cooler areas like bedrooms or for thermal bridges like corners. In general, it can be assumed that is achieved at a room temperature averaging 21 ° C and a surface temperature of the inner surface of the outer wall of 11 ° C dew point. When below this 11 ° C, the state of the air runs along the saturation line, it creates condensation on the cooler surface. In this case it is necessary to perform thermal insulation of the walls to the interior wall surface to increase temperature.

It must be noted however, that the insulation may be confused with the heat storage. A higher heat storage capacity for heavy building materials (solid walls) can compensate for temperature fluctuations better than lightweight structures and thus also provide a better buffer of the air. Sufficient insulation, proper ventilation, and heating are crucial for the prevention of mold.

Furniture, curtains, and the like are hardly resistant to humidity, like the indoor humidity which penetrates behind the furniture to the walls. At the same time the heat gets into a space by a reduced convective, and then radiating heat is transferred behind furniture and curtains. The wall along such areas means the relative indoor humidity is increased and can lead to mold growth. Therefore, care should be taken to have sufficient convection behind such furnishings.

Temperature regulation, moisture reduction

An increase in air temperature is caused by heat – at the same absolute water content of the air – a decrease of relative air humidity. It also is increased by heating the room, the surface temperature of the inner walls. Both effects contribute to a reduction in the risk of mold growth. If single rooms are not heated or even less, rises in reverse, there is the risk of mold growth. This is particularly true in areas (like bedrooms) that may be used for many hours. A lot of moisture is produced, and it increases the humidity and cold walls are at the risk of condensation. Therefore, unused or little used rooms should be heated slightly over a longer period. Doors to seldom used rooms should be closed. It does not make sense to control the temperature of cool rooms with air from warmer areas. This means consumers will not only heat them, but also the moisture is carried into the cooler room. If the air then cools, the relative air humidity changes and turns on the risk of mold growth. Here, too, it is important to note that the surface moisture on the inner surfaces of outer components is not only related to the ambient humidity, but also is dependent on temperature differences between air and surface. This is significantly influenced by the moisture production in the living room. A high moisture production leads to higher air humidity and thus to higher surface moisture. The ventilation is the most effective means to remove moisture from the home. An exchange of air from the interior to the outside walls of the structure is often mistakenly believed there but it is not the case. The term used in this context, like the “breathing wall” is only seen in connection with the regulation of humidity (moisture buffering).

The moisture regulation will change according to the wall’s ability to take in or release water into the room’s air. As mentioned, solid walls usually have a stronger buffering effect than lightweight structures. The speed and possibility of compensation for the absorption depends strongly on the porosity and the ab-and desorption of the building materials used. A brick has a higher porosity than many natural stones and is therefore cheaper in the humidity regulation.

Proper ventilation

The ventilation of living spaces means the actual exchange of air. Convection (air movement) can only come through different air temperature states. If one allows the windows to remain open in the wintertime with the radiators turned off, then the air exchange isn’t as efficient. A temperature balance between outdoor and indoor air leads to the stoppage of ventilation. If the radiators are turned off near the titled windows, airflow is stagnant and there is not a good air exchange.

Therefore it doesn’t make any sense to open all windows before leaving the house in the morning. Make sure the heating is off before leaving the house. On behalf of the Federal Environmental Agency in relation to the proper ventilation of the living space, see the following information:

The most effective way to remove moisture from the living space is by doing cross ventilation several times a day. This short-term procedure (5-10 mins., depending on the number and arrangement of windows) will help to remove moisture. If this moisture can only be released in the morning after rising, according to season, room size and air temperature, etc. it is best to ventilate for 30-40 mins. (shock and / or cross ventilation). Only ventilating at night is not a good idea. Then the room must be aired for a longer time (1 hour and longer), because the moisture has been fixed in the walls and furniture, and only slowly escapes. During the ventilation, the heating shouldn’t be stopped completely. In this regard, noted that on a long term ventilation is not recommended because of the tilted windows which are associated with high heating costs. Also the removal of the corpus lip seals in newer, thick windows is not recommended in any case.

It is recommended if one cannot ventilate correctly, to then install a ventilation and air-conditioning (HVAC system) in the house. HVAC systems provide fully automatic proper ventilation and heating exchange due to their characteristics (the exhaust heat warms the fresh air) and it also contributes to energy conservation.

Conclusion:

Mold on interior walls have at least one adverse health effect, contrary to many opinions. The causes of mold growth can be discovered by examining the civil engineering of the building. It is therefore recommended always to seek professional advice directly at the scene. Experts in evaluation would include a biological and building surveyor.

Author:

Gerhard Holzmann; Holzmann-Bauberatung; Certified expert office, construction and management consultant – so that everything fits like it should – www.Baubegriffe.com Phone 0049-8293-965648

Translation: Christi Howarth for CSN – Chemical Sensitivity Network

Original article: Ursachen von Schimmelbildung im Haus

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Study could not confirm link between mental illness and chemical sensitivity

For several years the Swedish Prof. Dr. Eva Millqvist researched the disease of hyperreactivity of the respiratory tract and the environmental condition of Chemical Sensitivity (MCS). She specializes in the range of responses to respiratory irritants.

Sick from odors and fragrances

Patients with respiratory symptoms which are triggered by chemicals and odors, are commonly found in allergy clinics. According to Millqvist and her team, these health problems are not explained by asthma or allergic reactions.

German patients frequently report that after they report reactions to chemicals or odors to their allergist, the prospect of seeing a psychologist has been recommended. Whether or not this recommendation is actually appropriate for these patients, it is precisely what this new study from Sweden addresses.

Studies showed reactions

Millqvist’s previous studies have shown that MCS patients often have an increased sensitivity to inhaled capsaicin. This ingredient of chili is famous sensory reactivity. A diagnosis of sensory hyperreactivity of the airways (SHR) is proposed for these kinds of complaints.

In a recent study this renowned scientist and two colleagues, sought to discover whether there is a relationship between asthma and sensory hyperreactivity (SHR). In addition, the research team wanted to investigate whether patients with signs of SHR had increased psychiatric morbidity (anxiety, depression, etc.).

Patients were subjected to tests and questionnaires

The researchers took 724 patients with suspected allergies or asthma from an asthma center. All patients had a questionnaire regarding reactions and behavioral disorders caused by fragrant substances.

A standardized Capsaicin test was carried out and then a questionnaire was given to assess psychiatric morbidity in patients with severe chemical sensitivity to identify those who suffer from SHR.

No evidence of depression or anxiety

Only about 6% of the asthma patients from the allergy center, who participated in the study, had sensory hyperreactivity (SHR). Millqvist and her colleagues stated that this is in consistent with the prevalence in the general Swedish population. There was no significant evidence that SHR is consistent with anxiety or is related to depression.

Patients should insist on precise diagnostic evaluation

The study appeared in the July 2010 issue of the medical journal “Annals of Allergy, Asthma & Immunology.” Those patients who respond to chemicals and odors with hyperreactive respiratory symptoms should perhaps seek an experienced environmental medicine professional if their allergist makes a reference to the possibility of a mental illness.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, 2. September 2010.

Translation: Thank’s to Christi Howarth.

Literature:

Johansson A, Millqvist E, Bende M., Relationship of airway sensory hyperreactivity to asthma and psychiatric morbidity, Department of Respiratory Medicine, Central Hospital, Skövde, Sweden, Ann Allergy Asthma Immunol. 2010 Jul; 105(1):20-3.

Quality management is required in the diagnosis of fibromyalgia and MCS

There is a connection between fibromyalgia and MCS confirmed by studies. Patients suffering with fibromyalgia (FM) have reported frequent complaints which are outside of their problem area of the musculoskeletal system, and chemically sensitive patients, in addition to their reactions to low doses of chemicals, repeatedly experience pain in different body regions. Fibromyalgia is commonly regarded as an atypical soft-tissue rheumatism. The diagnosis is made mainly by an examination of 18 pressure sensitive parts of the body, called tender points. Scientists from Scandinavia reported more than ten years ago that there is an overlap between MCS and fibromyalgia, which has major relevance for the medical diagnosis for patients. A recent Canadian study in February 2010 confirmed this result. The authors of this study, in a medical journal, appealed for adequate education and specific related information in the health field and to the public in order to improve the prognosis for patients.

Pain on pain

Patients with fibromyalgia or chemical sensitivity often experience pain which they describe as a “toothache all over the body.” Scientists from Scandinavia reported in the late nineties of the existing relationship between these two diseases.

What exists for fibromyalgia patients also exists for MCS patients?

The objective of a pilot university rheumatology study was to determine how often MCS occurs in patients with Fibromyalgia. The research team designed a questionnaire decided whether the patients indeed also had MCS. The physicians used criteria from a new study by using an immunological profile of patients who could be identified with this disease. Patients responded with a yes or no response to confirm the presence of 48 FM-related symptoms. (1)

Study finds link between MCS and FMS

The results of the study were published in the first half of 1997 in the medical journal, “Scandinavian Journal of Rheumatology.” Thirty-three of the 60 patients with fibromyalgia fulfilled the criteria for MCS. Eleven of those patients met more restrictive criteria, which demonstrated the high severity of chemical sensitivity. In addition, scientists found that the sensitivity symptoms and reactions of the triggering substances that were most frequently cited by the FM patients were similar to those reported by MCS patients in other studies. A chemical sensitivity existed in more than half the patients with fibromyalgia, thus the Scandinavian researchers concluded that MCS may be an additional symptom in the complex spectrum of fibromyalgia.

Canadian study confirmed the simultaneous existence of MCS and FMS

The fact that both conditions exist simultaneously has been affirmed by studies in recent years. The targeted diagnosis should be considered because of the potentially dramatic effects on the sufferers of MCS and FMS. This was evident in a study of the environmental clinic (EHC) in Toronto. The Canadian researchers studied 128 patients for the presence of MCS, CFS, and FMS, and identified the impacts in their everyday lives. Eight of the 70 patients received the MCS, CFS, or FM diagnosis, while the remaining patients had two or three overlapping diagnoses. What a great impact in the study of environmental disease for patients and readers of the magazine for Canadian GP, in the February 2010 edition. Most of the study participants (68%) had to leave work, on the average of three years after the onset of their symptoms due to their illness. (2)

Relevance for the diagnosis of environmental and mainstream medicine

The studies of 1997 and early 2010 reveal that medical practices must take a thorough medical history of the patient and make an appropriate diagnosis at the onset of one of these two diseases of FM or MCS. After the clinical results indicate a patient has MCS, then there needs to be a clarification whether or not the patient also has fibromyalgia. This can be detected with little effort by any doctor by checking the 18 tender points. At the same time, fibromyalgia patients must be asked about a hypersensitivity to chemicals which is likely, despite the lack of the study results being integrated into mainstream medicine over the last ten years. It is extremely important for rheumatologists to be familiar with the diagnosis of MCS for their FM patients. The prognosis for fibromyalgia patients significant improvement could be then specifically targeted with treatments and appropriate prevention strategies which deal with the triggering affects of chemicals.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, August 2010

Translation: Thank you to Christi Howarth.

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