On November 2009 I was interviewed on Carne Cruda, Spanish radio program, to talk about Multiple Chemical Sensitivity and one of the listeners of the program, the videographer Víctor Moreno, was so impressed that he quickly contacted me to say that he wanted to make a short film about MCS to help us to raise awareness of this terrible disease and he asked my opinion and if I wanted to collaborate with them. Obviously I told him that they could count on me for what they wanted.

On March they began filming “The birds of the mine”, the first short film about Multiple Chemical Sensitivity in Spain, and now we can finally present the trailer and announce that its debut will be next December. When this project began, I had the honor of reading the script, because they wanted my opinion, and then I saw some scenes of the shoot and I can assure you that is very, very impressive, as you can deduce from the trailer.

Autor: Eva Caballé, No Fun, Oct. 25, 2010

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• How to become a an MCS Activist in less than 365 days? Have a look to Spain!
• The naked truth about MCS – Multiple Chemical Sensitivity – Including Forewordabout German Situation

Do you remember, around the middle of 2010 when the parents of a young Spanish woman, Elvira Roda, who suffers from severe chemical sensitivity (MCS), asked for help? Do you recall that Elvira was living in a specially prepared, very expensive, pollution-free house where the city applied pesticides?

EMM Blog: Cry for Help – Young Woman in Danger

This seriously ill woman collapsed from the nerve agents, which were sprayed and resulted in putting her into a critical condition. For days she was in the worst health state possible and had to sit in a lawn chair by the sea. The parents tried to stop the city leaders from this application of pesticides, neurotoxic organophos- phates, but it was in vain.

A petition for Elvira, was released worldwide on many MCS blogs and by organizations. People from different countries signed, asking the city officials to refrain from spraying pesticides outside the home of this young woman.

Elvira’s life is in danger again

A day ago the parents of Elvira again asked for help because the city of Alboraya has now begun to spray a herbicide.

Please read her parent’s letter below and support by signing the petition for Elvira.

For Elvira’s sake:

Thanks to everyone who supported Elvira Roda by signing the petition to the Alboraya City Council in Valencia , Spain and asking them not to use chemicals that are harmful to humans and the environment, but instead requesting them to find healthier alternatives.

Our family has tried everything possible to prevent further spraying, but unfortunately today on October 5th, the Alboraya City Council will begin using new fumigation using Plus Roundup (glyphosate), and other environmentally harmful chemicals.

We have requested them to use environmentally friendly, natural alternatives, and asked the city council to inform the public prior to the spraying, but both requests were unsuccessful. We therefore believe it necessary for the health of all, to continue to collect signatures on the petition. We need you. With these efforts, we will certainly succeed.

Please help Elvira Roda! Tomorrow it could be one of you, who needs the help of us all.

For more information regarding Elvira’s situation, please see:

Support for Elvira Roda

To sign the petition, go to >>> Petition to Elvira Roda (sign at the bottom)

Thank you for your support!

For several years the Swedish Prof. Dr. Eva Millqvist researched the disease of hyperreactivity of the respiratory tract and the environmental condition of Chemical Sensitivity (MCS). She specializes in the range of responses to respiratory irritants.

Sick from odors and fragrances

Patients with respiratory symptoms which are triggered by chemicals and odors, are commonly found in allergy clinics. According to Millqvist and her team, these health problems are not explained by asthma or allergic reactions.

German patients frequently report that after they report reactions to chemicals or odors to their allergist, the prospect of seeing a psychologist has been recommended. Whether or not this recommendation is actually appropriate for these patients, it is precisely what this new study from Sweden addresses.

Studies showed reactions

Millqvist’s previous studies have shown that MCS patients often have an increased sensitivity to inhaled capsaicin. This ingredient of chili is famous sensory reactivity. A diagnosis of sensory hyperreactivity of the airways (SHR) is proposed for these kinds of complaints.

In a recent study this renowned scientist and two colleagues, sought to discover whether there is a relationship between asthma and sensory hyperreactivity (SHR). In addition, the research team wanted to investigate whether patients with signs of SHR had increased psychiatric morbidity (anxiety, depression, etc.).

Patients were subjected to tests and questionnaires

The researchers took 724 patients with suspected allergies or asthma from an asthma center. All patients had a questionnaire regarding reactions and behavioral disorders caused by fragrant substances.

A standardized Capsaicin test was carried out and then a questionnaire was given to assess psychiatric morbidity in patients with severe chemical sensitivity to identify those who suffer from SHR.

No evidence of depression or anxiety

Only about 6% of the asthma patients from the allergy center, who participated in the study, had sensory hyperreactivity (SHR). Millqvist and her colleagues stated that this is in consistent with the prevalence in the general Swedish population. There was no significant evidence that SHR is consistent with anxiety or is related to depression.

Patients should insist on precise diagnostic evaluation

The study appeared in the July 2010 issue of the medical journal “Annals of Allergy, Asthma & Immunology.” Those patients who respond to chemicals and odors with hyperreactive respiratory symptoms should perhaps seek an experienced environmental medicine professional if their allergist makes a reference to the possibility of a mental illness.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, 2. September 2010.

Translation: Thank’s to Christi Howarth.

Literature:

Johansson A, Millqvist E, Bende M., Relationship of airway sensory hyperreactivity to asthma and psychiatric morbidity, Department of Respiratory Medicine, Central Hospital, Skövde, Sweden, Ann Allergy Asthma Immunol. 2010 Jul; 105(1):20-3.

The broadest possible integration of disabled people is the goal of all countries which are signatories to the UN Disabilities Convention. The countries which have signed this convention and ratified it, may be viewed here:

Rights and Dignity of Persons with Disabilities

This internationally binding document has validity for those countries who have signed and ratified it. Direct efforts should have been pursued by the signatories so that all disabled children receive an education. No disability must be preferred over an other. MCS – Multiple Chemical Sensitivity is a physically caused disability which needs recognition in the educational realm.

In the U.S. and Canada, there is a steady growing number of schools and local univer- sities that are integrating policies for chemically injured students and adapting conditions to include this disability. The transition has been mainly on a volunteer basis initially, with perfume bans and an effort to use chemically free cleaning products.

Students with MCS

There are severe cases of children and young teens with chemical compromises which seem to have little hope of a successful future due to their disability. The chemical triggers are so overwhelming on their various physical systems that they are unable to attend a traditional school setting without well thought out appropriate accommodations.

A big problem for these students in traditional school settings is falling behind academically. Due to their reaction difficulties at school, they miss a lot of instructional time. Parents report their children missing hours, days, and sometimes months of school , and trying to catch up at home with all the required instructional materials from the teacher(s) is extremely difficult.

Then there is often trouble with the school or school authorities. Whether the modifications for these disabled students will be feasible to get the education requirements needed depends on the consideration of the school, the classmates, building maintenance, chemical substances used at the school site, in and outside the individual classroom.

Questions to be answered in individual countries:

• How does my country integrate children and young people who have chemical sensitivity?
• What are the guidelines for dealing with chemically sensitive students in a traditional school setting or what accommodations can the school offer?
• Are schools in my country responsive to students with MCS?
• Do authorities in my country have policies in place which enable chemically sensitive students to achieve a quality education?
• Does my country cover free internet schooling education for students suffering with chemical sensitivities?
• What policies would schools have to change in order to successfully integrate students with MCS?

When the book, “Missing. A Life Destroyed by Chemical Sensitivity” came into bookstores, the sales were surprisingly high. The author of this book, Eva Caballé is chemically sensitive and can exist only within the walls of her safe apartment. Several air filtering machines run day and night. She can tolerate only a few foods, and her water must be specially filtered. Visitors are not allowed into her apartment because the fragrance and detergent residues could cause her to experience a severe reaction. Despite the severity of her disease, this Spanish woman insists on enlightening the public about this condition. Her blog, NO FUN, became her mouthpiece and is read daily by thousands.

Through interviews which Eva’s husband David gave on TV, radio, and to newspapers, Eva’s story was known before her published book was on the shelves. Now her book will be made for a radio series.

Last month, David gave interviews for a radio program called “Vital Space” which discusses chronic illnesses. The program producers were enthusiastic about Eva’s book and want to make the public more aware of chemical sensitivity. Details regarding MCS are not yet well know in Spain.

The response was enormous, which led to the idea of the MCS book as a radio series.

Eva and her husband David agreed, and wrote an editorial for this series. Two professional actors, whose voices are very similar to Eva and David have been hired. A moderator has also been hired to coordinate the recordings. The whole book has been set to music and accompanied by background music. Next fall the series will begin. For each chapter there will be ten minutes of airtime available. Over a period of 21 weeks radio listeners will experience the naked truth about Multiple Chemical Sensitivity.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, July 26, 2010.

Translation: Many thanks to Christi Howarth!

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Articles written by Eva Caballé:

• Naked Truth about MCS
  
• Metamorphosis insinde Multiple Chemical Sensitivity
• Dreams that kill
• Manifesto – We know they are lying to us
• Interview with Eva Caballé about Multiple Chemical Sensitivities and her book