Do you remember, around the middle of 2010 when the parents of a young Spanish woman, Elvira Roda, who suffers from severe chemical sensitivity (MCS), asked for help? Do you recall that Elvira was living in a specially prepared, very expensive, pollution-free house where the city applied pesticides?

EMM Blog: Cry for Help – Young Woman in Danger

This seriously ill woman collapsed from the nerve agents, which were sprayed and resulted in putting her into a critical condition. For days she was in the worst health state possible and had to sit in a lawn chair by the sea. The parents tried to stop the city leaders from this application of pesticides, neurotoxic organophos- phates, but it was in vain.

A petition for Elvira, was released worldwide on many MCS blogs and by organizations. People from different countries signed, asking the city officials to refrain from spraying pesticides outside the home of this young woman.

Elvira’s life is in danger again

A day ago the parents of Elvira again asked for help because the city of Alboraya has now begun to spray a herbicide.

Please read her parent’s letter below and support by signing the petition for Elvira.

For Elvira’s sake:

Thanks to everyone who supported Elvira Roda by signing the petition to the Alboraya City Council in Valencia , Spain and asking them not to use chemicals that are harmful to humans and the environment, but instead requesting them to find healthier alternatives.

Our family has tried everything possible to prevent further spraying, but unfortunately today on October 5th, the Alboraya City Council will begin using new fumigation using Plus Roundup (glyphosate), and other environmentally harmful chemicals.

We have requested them to use environmentally friendly, natural alternatives, and asked the city council to inform the public prior to the spraying, but both requests were unsuccessful. We therefore believe it necessary for the health of all, to continue to collect signatures on the petition. We need you. With these efforts, we will certainly succeed.

Please help Elvira Roda! Tomorrow it could be one of you, who needs the help of us all.

For more information regarding Elvira’s situation, please see:

Support for Elvira Roda

To sign the petition, go to >>> Petition to Elvira Roda (sign at the bottom)

Thank you for your support!

And in this decaying world, the worst is to be spineless and to have no personality. It is a world full of people who complain and who live grey and empty existences. People who do not have the courage to resist, to have their own thoughts and get dragged by the crowd. It is hard to live in this herd if you are not like them, if you know what you think, if you are not scared to say what you think, and if you do not care about not being accepted by others. Then you don’t fit in, you are different, you are radical.

But an ill person cannot be like that. You have to be well-behaved, let yourself be brain-washed and follow the established road wearing a mask without thinking. If you have Multiple Chemical Sensitivity, an illness that is not recognized, you fight to survive. But don’t make too much noise and just follow others. Don’t think, don’t do. You are sick. Behave as such. You have to be obedient and ask for permission so that you will not be thrown out of the herd, a herd for which others kill themselves to be a part of.

And in the ignorance that surrounds us, the seven capital sins are more relevant than ever, in these times when there seems to be a theory for just about everything. In these times of the decaying Welfare State.

With the senses numbed, SEX becomes another frustration in an empty life in which to drag him or herself day after day without stopping to think.

It is a life with the frustration that becomes an unsatisfied HUNGER. Eat until you burst. That anxiety which impedes one from reacting and keeps one squashed under a mountain of human feed. The perverted pleasure in an overfed society.

An emptiness that invades us and a growing hate which turns into anger against all that does not suit us under childish and ridiculous excuses. INTOLERANCE becomes violence against those who are not like us, perhaps because those who think scare us.

Without being conscious of our lives, the days go by while we look at our pockets to see if we are better than others. We COMPETE in a silly race to show our success. We pretend we are happy. Inside, we are empty.

Life is a parenthesis of fear and of superficial comfort waiting for things to change WITHOUT MAKING AN EFFORT, sucked in by a system that wants us not to think.

We are dragged by laziness. We hate those who we think are better than us. They remind us of our not wanting to make an effort. We waste our lives wishing that they would stumble while we CRITIZICE their successes and, without knowing it, we wish they were as mediocre as us.

A cheap plastic beauty poisons us, one that makes us feel better for a moment in which we think we are better than others. A toxic beauty for which we don’t care the price we pay in a world where real health is not valued. Enormous fake PRIDE, the arrogance caused by ignorance. Who wants to be healthy if one can seem beautiful even if being stupid? Who does not want to seem better than others?

Does anyone dare to live without a mask?

Author: Eva Caballé, No Fun Blog, September 2010

Photos: Aida / Deliro

German Translation: Ohne Maske

More articles written by Eva Caballé:

• Naked Truth about MCS
  
• Metamorphosis insinde Multiple Chemical Sensitivity
• Dreams that kill
• MANIFESTO – We know they are lying to us

In 2013 in Zurich, Switzerland, a new housing project for people with MCS will be complete. Environmental illness is widespread in Switzerland, with statistics from authorities estimating approximately 5000 affected people. The city of Zurich will help with the real estate and construction law of the housing project for the chemically injured. “The project, costing about 5.8 million francs will be remembered as a pioneering project for healthy living in Zurich’s history,” said city council member Marin Vollenwyder at a press conference today in Zurich. The city has set the goal for itself… “HOUSING FOR ALL,” which means the city also supports this chemically injured population which has a difficult time finding appropriate housing.

Hope is finally within reach

Christian Schifferle, the founder of this Healthy Living Project for those with MCS, and president of the self help support group, MCS League Switzerland, has waited many years for this project. Two years ago he founded this cooperative, and since then it has progressed in leaps and bounds. Today Christian Schifferle said in an e-mail:

“I just came from the media conference discussing the MCS apartment project in Zurich, and I’m still overwhelmed and barely managed to give my speech. The Neue Zürcher newspaper has published an article, and today or tomorrow a report will be on Tele Top. I will report the new details in my next email. Currently I am sleeping in my car but am promised a transitional solution for my accommodations.”

Architect commitment

There was more good news this week from Switzerland. Schifferle added that the Healthy Living MCS housing project will be strengthened by Marianne Dutli Derron, an architect who has worked as a consultant at Zurich SVW, which is the umbrella organization for over 200 housing associations in Zurich. Her office is directly next to the MCS housing association. Ms. Dutli Derron has been elected as the executive manager of this housing project, and will work with Dr. Roman Lietha and Christian Schifferle. At the next general meeting, Ms. Dutli Derron will be asked to be a board member and co-president. She brings eight years of experience as president of another Zurich housing project. A few weeks ago Schifferle asked the architect to join the MCS project and of course, is very pleased to have this commitment.

Professional support

The issue of MCS living is not new for Ms. Dutli Derron. She was one of the jury members for the MCS architectural competition on this project, and understands what is required to make this housing project a success. Christian Schifferle has offered his professional support which is crucial since he has suffered since childhood from severe MCS and knows much about the details needed for those with this environmental compromise. He has invested his energies for years in seeing this project become a reality. Difficult decisions over the coming months will be made during the construction phase. Support and expertise will be needed for the success of this healthy living project. Schifferle is anxious to relate the needs of the chemically injured population, and is thrilled to have Ms. Dutli Derron as a project expert on the board.

Healthy living has a big future

The city of Zurich while providing this housing project for those with MCS is taking on a pioneering project. It is the first residential project emerging for the chemically injured in Europe. In September 2009, the financial department of the city approved a loan of 150,000 francs for the implementation of a study for the residential building with ten apartments for MCS sufferers. The MCS house is designed from the ground up biologically and scientists offer their support on the residential project.

Technical and old workmanship combined

As the Zurich newspaper explains, the focus of this particular building is one of careful choices of safe building materials and expert workmanship. This structure will even be fitted with special locks so that the inhabitants can clean off chemical substances as they enter. This pioneering project will be challenging to build because of the use of old craft techniques, some of which have been forgotten, combined with modern safe materials.

Glass fiber rods will be used, which, until now, were never tried in structural engineering. The material conducts either heat or electricity. The MCS building will also try an external wall construction of insulating bricks with a variety of biologically active inner skin with clay and lime plaster. Perhaps this project will have unusual looking materials and processing techniques which are different from normal residential projects, but it is hoped that the architectural firm which has received the contract for this innovative project will emerge with a successful outcome on all levels. In addition the firm desires to give innovative input to traditional residential projects as well.

For Christian Schifferle (video), he must sleep for two more years, through long cold nights in the car or on the cot in the forest. After the enormous efforts that he has devoted to this project, he will hopefully have a home in which he and other MCS sufferers can live without symptoms, and thus experience real healthy living. As a next step, with Schifferle’s leadership, Germany will begin safe housing projects for healthy living as well. Perhaps eventually these projects will be prototypes for healthy living buildings for MCS sufferers around the globe.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, Sept. 10, 2010

Translation: Thank you very much to Christi Howarth

Related Articles:

• Zurich targets first MCS Housing Project in Europe and issues an invitation to tender
• Cry for help – Young woman in danger
• New Housing Non-Profit Forming with Focus on Environmental Sensitivities
• The last few months of life of Angelika who was chemically sensitive
• An Italian Multiple Chemical Sensitivity Sufferer shouts an inconvenient truth with his death

For several years the Swedish Prof. Dr. Eva Millqvist researched the disease of hyperreactivity of the respiratory tract and the environmental condition of Chemical Sensitivity (MCS). She specializes in the range of responses to respiratory irritants.

Sick from odors and fragrances

Patients with respiratory symptoms which are triggered by chemicals and odors, are commonly found in allergy clinics. According to Millqvist and her team, these health problems are not explained by asthma or allergic reactions.

German patients frequently report that after they report reactions to chemicals or odors to their allergist, the prospect of seeing a psychologist has been recommended. Whether or not this recommendation is actually appropriate for these patients, it is precisely what this new study from Sweden addresses.

Studies showed reactions

Millqvist’s previous studies have shown that MCS patients often have an increased sensitivity to inhaled capsaicin. This ingredient of chili is famous sensory reactivity. A diagnosis of sensory hyperreactivity of the airways (SHR) is proposed for these kinds of complaints.

In a recent study this renowned scientist and two colleagues, sought to discover whether there is a relationship between asthma and sensory hyperreactivity (SHR). In addition, the research team wanted to investigate whether patients with signs of SHR had increased psychiatric morbidity (anxiety, depression, etc.).

Patients were subjected to tests and questionnaires

The researchers took 724 patients with suspected allergies or asthma from an asthma center. All patients had a questionnaire regarding reactions and behavioral disorders caused by fragrant substances.

A standardized Capsaicin test was carried out and then a questionnaire was given to assess psychiatric morbidity in patients with severe chemical sensitivity to identify those who suffer from SHR.

No evidence of depression or anxiety

Only about 6% of the asthma patients from the allergy center, who participated in the study, had sensory hyperreactivity (SHR). Millqvist and her colleagues stated that this is in consistent with the prevalence in the general Swedish population. There was no significant evidence that SHR is consistent with anxiety or is related to depression.

Patients should insist on precise diagnostic evaluation

The study appeared in the July 2010 issue of the medical journal “Annals of Allergy, Asthma & Immunology.” Those patients who respond to chemicals and odors with hyperreactive respiratory symptoms should perhaps seek an experienced environmental medicine professional if their allergist makes a reference to the possibility of a mental illness.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, 2. September 2010.

Translation: Thank’s to Christi Howarth.

Literature:

Johansson A, Millqvist E, Bende M., Relationship of airway sensory hyperreactivity to asthma and psychiatric morbidity, Department of Respiratory Medicine, Central Hospital, Skövde, Sweden, Ann Allergy Asthma Immunol. 2010 Jul; 105(1):20-3.

Series:  “The Danish MCS Research Centre in the International Field of Vision”

Part III:

Until 2008 it was a common practice in Denmark for local authorities to grant severe MCS sufferers free aid under the service law, section 122, by giving them half mask respirators with activated charcoal filters.

In 2008 a severe female MCS sufferer had her application rejected by the local authorities for this respirator. This case ended at the Danish appeals board, which upheld the rejection on the following grounds:

“…there is no medical documentation for the chronic manifestations of the disease (MCS), its causality, lack of diagnostic criteria and treatment, as well as there is no medical documentation that the mask can sufficiently remedy functionality in her daily life.”

After this incident, a number of MCS patients had their grants for the respirators with filters also suspended by their local authorities, referring to the above ruling.

At the same time, there is no hospital ward in Denmark at all that is committed to examine, diagnose, treat and/or guide this group of severe MCS suffers. All instances refer to the Research Center for Chemical Sensitivities in Copenhagen, which was established in 2006 with minimal grants, but which does not occupy itself with MCS patients, except for using them as test subjects in PhD studies or projects.

The Research Center denies research effects of mask respirators on the MCS population

After the ruling by the appeals board, a great number of MCS sufferers contacted the Research Center to make them document the effects of the respirators with filters for the MCS population, since these are for the time being, the only efficient treatment option for those with MCS, besides the so-called avoidance strategy which leads to social isolation and thus to the possible risk of a subsequent psychological impairment due to isolation from the outside world in the MCS patient’s life. However, this isolation can be reduced by wearing a mask respirator.

To the MCS sufferers’ great astonishment and despair, the Research Center, however, published on its homepage that they were not going to research the effects of half mask respirators with activated charcoal filters on the MCS population. Their arguments, were among others, was that an investigation into the effects of mask respirators on MCS sufferers would require a clinically controlled study, and such a study must be both placebo-controlled and double-blind in order for the results to become reliable and useful.

Thus, the Research Center does not prioritize spending research funds on a study of mask respirators, but focuses instead on researching possible disease mechanisms and other therapy strategies. (1)

In this way, Danish MCS sufferers can see no prospect of anyone obtaining the documentation required by the Danish social system. Thus there is no prospect of being granted mask respirators, the aid which is extremely vital for sufferers – a crazy paradox not worthy of a modern welfare society.

Instead, the Research Center regards electroconvulsive therapy of MCS sufferers as interesting

Simultaneously with the above, the Research Center was following a male MCS sufferer who accepted being subjected to electroconvulsive therapy over six months (at first eight electroshock treatments over three weeks, and after that every two weeks), and on the basis of this one MCS patient’s subjective evaluation of the effect of this electroconvulsive therapy – a ”study” that, of course, was neither placebo-controlled nor double-blind – the Research Center published a scientific article: ”Electro- convulsive Therapy Substantially Reduces Symptom Severity and Social Disability Associated With Multiple Chemical Sensitivity: A Case Report. “Elberling et al. (2) with this conclusion: “In this case, a substantial, positive effect on symptom severity and social disability related to MCS was obtained by an initial somatizing patients course and maintenance treatment. Electroconvulsive therapy should be considered an option in severe and socially disabling MCS, but more studies are needed to evaluate if ECT can be recommended as a treatment for MCS.”

The limited research funds are gladly spent on Mindfulness therapy

Also, the Research Center is planning to spend its very limited funds to research the effects of Mindfulness based cognitive therapy on MCS.

In 2008 the Research Center performed a pilot project study in cooperation with the Center of Psychiatry, The Copenhagen University Hospital, where the title of this pilot project on the homepage of the Copenhagen University Hospital was ”Mindfulness based cognitive therapy of somatizing patients, primarily MCS patients.”

However, this title was in haste changed to: “The Effects of Mindfulness Based Cognitive Therapy with Persons with Hypersensitivity to Fragrances and Chemical Substances,” since MCS sufferers found out that the Research Center, in cooperation with the Center of Psychiatry, considered them mentally ill. Jesper Elberling, the then scientific leader of the Research Center, had meanwhile passed it all off as a “mistake.”

Right now, in continuation of this above-mentioned pilot project, a PhD study is being planned, to investigate the effect of Mindfulness on the MCS population. This is obviously one of those therapy strategies in which the Research Center gladly prioritizes its limited research funding, notwithstanding that Danish MCS sufferers again and again have told the Research Center that mask respirators are an efficient therapy strategy, whereas no one has ever heard or hears about MCS sufferers who have experienced any effects on their MCS from Mindfulness therapy.

Will the Research Center follow its own persistence and demand the placebo-controlled and double-blind studies in its coming research?

In the near future, the Research Center will start up its new study on the effects of Mindfulness therapy on MCS, and we shall then see if the Research Center will actually live up to its own demands and arguments that therapy effects require [DP1] a clinically controlled study, which is both placebo controlled and double-blind, in order for the results to become reliable and useful.

These demands apply hopefully not only for therapy forms, (the effects of which the Research Center does not want to document), such as half mask respirators with activated charcoal filters that are indeed vital to most severe MCS patients, and at the moment are the only treatment strategy that gives MCS sufferers the temporary possibility of being able to move about in the public domain, and which severe MCS sufferers experience as a highly efficient therapy strategy. However this highly efficient therapy strategy lacks – according to the Research Center – ”scientific documentation” which apparently nobody in Denmark wants to obtain.

Author: Bodil Nielsen, Denmark

Translation: Dorte Pugliese for CSN – Chemical Sensitivity Network

Series:  “The Danish MCS Research Centre in the International Field of Vision”

Part I: MCS – Multiple Chemical Sensitivity: A Report from Denmark

Part II:Changes of the international science of chemical sensitivity at the Danish Research Centre for Chemical Sensitivities?