Scent marketing alarms the trade supervision and labor unions

Businesses that use fragrances in order to encourage customers to linger and buy, are becoming increasingly common. The scent marketing industry promotes the retail branch strongly. The fragrances that one finds in the shops are mixtures of different natural essential oils or chemical compositions. Neither is harmless for employees or customers. In Denmark, the trade supervision and labor unions are keeping their eye on the American fashion chain, “Abercrombie & Fitch”. The fashion chain is known for using the fragrance Citronellol, an aromatic oil that is classified as questionable because it can be harmful to one’s health and it can trigger allergies. The Danish trade supervision is currently committed to putting an end to the scenting in order to protect the employees and customers of the fashion chain.

Authorities and labor unions are going up against scented store environments

In Denmark, labor unions are paying close attention to the authorities’ course of action against the American fashion company “Abercrombie & Fitch”. In their shops, it smells strongly of perfume. The significant fragrance is supposed to bind the customer to the brand and increase sales. The newspaper “Politiken DK” reports that so-called scent marketing has extremely increased in Denmark in the past three years. Anyone who visits certain stores frequently or is employed there, can develop allergies. It is an unnecessary burden on the employees, because many of the fragrances can cause allergic reactions – the newspaper quoted the head of the trade supervision.

Contamination of indoor air with chemicals and allergenic fragrance oils

The perfumes for a scented environment are often led directly into the store through the air conditioning and ventilation system. Smaller shops set up bottles with aromatic oils, containing wooden sticks which release the fragrance into the room. Both are questionable, not only for people who already suffer from perfume allergies, but also for asthmatics and chemically sensitive people (MCS). Even healthy people may sensitize over time and develop allergies.

The trade supervision wants to protect employees and customers

We are most likely dealing with allergens, which are injected into the stores, is what the head of the trade supervision told the newspaper “Politiken DK”. That’s why the authorities tried to contact “Abercrombie & Fitch” at the end of last year. The authorities tried to make it clear to them that they wanted to protect employees against the high concentration of perfume in the shops, because it is an unnecessary burden.

Labor unions are receiving more and more complaints

Danish labor unions report that they receive more and more complaints from union members about the scenting of their workplace. Therefore, the actions of the trade supervision in the case of “Abercrombie & Fitch” are being closely observed. It is a major health problem for the employees in those stores, but also for the customers, said a union spokesperson to “Politiken DK”. The customers, unlike the employees have the choice and can simply stay away from the scented store. The employee unfortunately does not have this choice, especially in times when everyone is happy to even have a job.

It remains to be seen how the American company will behave, what measures the Danish trade supervision will take, and how much pressure the Danish labor unions will make. If the Abercrombie & Fitch” management is smart, they will stop exposing their employees and customers to substances that can cause illness. Sick employees cost a company money, and when customers realize why they don’t feel well in a shop and stay away, they too, can cost the company a lot of money.

The German Federal Environmental Agency has been warning against the use of fragrances for this purpose for years – through several press releases and it’s own published background paper which writes about this issue, „Fragrances: When something pleasant becomes a burden.” (german) An increase of scented shops has also been reported in Germany. So far, there is no authority or union which is really trying to prevent it.

Autor: Silvia K. Müller, CSN – Chemical Sensitivity Network, 17. Januar 2012

Literatur:

Politiken.DK, Duftende butikker er farlige for ansattes og kunders helbred, 13. Januar 2012

Related Articles:

• Aromatherapy Can Produce Harmful Indoor Air Pollutants
• Scented laundry products emit hazardous chemicals through dryer vents
• Reckless Self-Interest Of The Fragrance Industry
• Scented consumer products shown to emit many unlisted chemicals

Contaminant-free living area designed for the environmentally ill

Europe’s one-of-a-kind housing project is designed for Switzerland. The planned start for construction is spring 2012 and the project is estimated at costing 5.8 million Swiss francs. The small to medium sized ecologically built apartments meet the strict health requirements of chemically sensitive people. The Swiss housing cooperative “Healthy Living MCS” was founded three years ago and since then has been working toward the realization of an MCS housing project. The city of Zurich agreed and sees enormous potential in the MCS residential project. The knowledge won through this project can be very useful for future ecologically built residential projects in the city.

Construction begins in spring

The news came at exactly the right time. Christian Schifferle (video) sent an email from Switzerland just in time for Christmas stating the following:

“There’s good news: A few days ago, we finally received the building permit from the city of Zurich for our Zurich MCS-housing project. All our planning in the last two years is on track. In January, the City of Zurich will begin with the development work (access, water, electricity) and April /May is the official start of construction.”

Contaminant-free housing

In Switzerland, there were, as in Germany and Italy, already cases of suicide, because the appropriate living space for chemically sensitive people has not been available. When no one offers help, the despair and helplessness is tremendous if the apartments are uninhabitable due to a hypersensitivity to pollutants and nothing adequate is available. Christian Schifferle, the initiator of the housing project knows about the catastrophic housing situation through his consulting work and from his own personal experience. He spent years searching for a suitable, pollutant-free apartment and camped in a caravan in the country. Often he had to sleep in the forest, regardless of weather or temperature. A long time ordeal finally comes to an end for him and other environmentally ill. But Christian Schifferle is already thinking ahead and would like to develop pollution-free housing projects for the environmentally ill all across Europe in cooperation with the MCS housing cooperative.

Author: Silvia K.Müller, CSN – Chemical Sensitivity Network, 02.01.2011

Related Articles:

• Scientifically guided MCS-housing project is in the making
• Zurich targets first MCS Housing Project in Europe and issues an invitation to tender
• New Housing Non-Profit Forming with Focus on Environmental Sensitivities

Evidence for the causes of environmental diseases have been around for a long time

The doctor and scientist Doris Rapp is one of those who not only practice environmental medicine, but has also made environmental medicine the most important thing in her life. The American spent two weeks in Germany. The reunion with Prof. Rapp was very productive and we were lucky enough to spend a beautiful day on the Moselle. Here is a small summary.

Researcher documented environmental disease

I met Prof. Rapp for the first time at a congress in Bad Emstal about 18 years ago. It was a crucial experience. In her presentation, she showed a video about a teacher who became ill from contaminated carpeting in the school. The teacher was filmed during a reaction to contaminated dust from the carpet. This video vividly conveys to the viewer what MCS is and what a reaction can look like. At that time I was at the very beginning of my own illness and had had similar reactions to certain pesticides. The teacher experienced convulsions and fell unconscious. I thought “my goodness, that’s me, that’s exactly like me, that’s what you have…“ After the lecture I spoke with Prof. Rapp and that was the beginning of an ongoing exchange of information and an interesting friendship. We met again at conferences in Germany, Holland and in the U.S., visited each other in Germany and the United States and exchanged e-mails. When I visited her in Scottsdale, she showed me one of her video archives. She had stored thousands of videos of children whom she had treated. They showed the patients during and after therapy and during testing of foods, mold, pollen, dust mites or chemicals. They displayed impressive evidence that can remove any last doubts as to the existence of environmental illnesses and allergies.

We can no longer ignore environmental illnesses

Dr. Binz and his wife invited the environmental doctor for this most recent visit to Germany. We had actually arranged to meet for a trip along the Moselle, which would start before lunch. We had a warm reunion and before we knew it we had already exchanged information and ideas and were in the midst of planning for future projects.

“I’m over 80 years old now and have no children, I don’t really need to be doing all this and I could be enjoying my peace at this age, but I see what’s going on, and I simply cannot remain silent. We have so many chemicals in our environment, in the food we eat, in the water we drink and the air that we are constantly breathing. They affect each of our body systems and we can no longer ignore this. Almost every second person in my country has cancer and that is just not acceptable”, says Doris Rapp.

“The politicians and the public must realize the impact the flood of chemicals has on us and no one should keep insisting that we do not know where all the increasing diseases that occur are coming from. The evidence is there. We have animal testing to prove it. That’s why, as a doctor, I ask: How much more has to happen before we admit to the real causes? I won’t accept hearing when one says, “Yes, but there’s nothing we can do about it.” Yes, there is, because you can educate yourself and there’s a hell of a lot you can do,” says Prof Rapp, who is enraged about the current situation.

Solutions are often very simple

Prof. Rapp is no one who can be at odds with the world and ignore the solutions. She is in the process of writing another book. “It will be a small book, only 30 pages. Every reader can easily understand how he/she can shape his environment in order to stay healthy. The tips in this book will not cost anyone a fortune, they can easily be implemented without major expense. It will help anyone who wants to change something and wants to improve his health. The doctor cites two examples:

“Many people react to foods, but are not sure towards which foods. Expensive tests are not necessary. I advise people to think about what they eat most, foods that they downright crave. Experience has shown that these are the foods that are eaten every day and most likely those which cause reactions. The solution: omit the suspected food for a week. You can test one food after another. This costs nothing! ”

“Some people live in a house that is contaminated with pollutants or contaminated by mold. My experience is that five out of seven people can improve their health by 70% if they obtain a high quality air cleaner that is capable of filtering hundreds of chemicals from the air in your home. Such a device may cost a bit, but I have often seen patients who got better over night. So it’s worth it if you are unable to directly move out of the apartment or house.”

The new book will be published this year, and Professor Rapp has authorized me to translate it into German. She also gave me permission to translate videos and other books into our language, contributing knowledge to allergy sufferers and chemically sensitive people in the German-speaking countries, helping them to find a way back into life.

A trip along the Moselle

During the drive to the historic Moselle wine village, Bernkastel, to Traben-Trabach and the drive back to Trier, Prof. Rapp was bursting with innovative ideas that we will begin to put into action in the next few months and they will benefit the environmentally ill in many ways.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, 12 September 2011

Related Articles:

• Scented laundry products emit hazardous chemicals through dryer vents
• Environmental diseases are not unexplained mysteries
• Damn, I do not accept that my life is over!
• School Integration for those with MCS possible

Environmental contamination from the everyday habits of humans cause “perfumed” fish

We encounter fragrances in everyday situations. We have “our world” scented even if we prefer to live fragrance and chemical-free. These scents come to us via our daily hygiene, food, cleaning products, baby diapers, candles, hotel rooms, and even socks and subway tickets have fragrance added. Mixtures of chemicals usually make up the perfumed ingredients. They accumulate in our fatty tissue, breast milk, and in our environment. A governmental laboratory in Switzerland found fish in high alpine lakes with fragrance ingredients. How did they get there, at altitudes seldom reached by a hiker, in a region where nobody lives?

The dream of clean air and water

Take a look at a peaceful scene in nature… high mountains at two thousand meters, crystal clear air, breathtaking panoramic views with deep blue mountain lakes. This scenery gives one the opportunity to feel one with nature, but appearances can be deceiving. A Swiss government laboratory for analytical chemistry has found samples of fish from the lakes in high mountains and lowlands which contain persistent organic pollutants (POPs) and fragrance ingredients.

Fish repository for insecticides, flame retardants, and fragrances?

Fish were examined from alpine lakes in seven regions above 2062-2637 meters sea level. The scientists found concentrations of old insecticides, and long banned chemicals like DDT, DDE, dieldrin, HPEX, HCB, HCH, PCBs, PCDD / F and PBDE in the fatty tissue of the fish . In addition to these highly questionable chemicals were found seven different artificial musks and Musk xylenes. These chemicals are components in fragrance mixtures, which are found in nursing, cleaning, laundry products and perfume.

Precipitation transports chemicals to the lake fish

Concentrations of PCBs, PCDD / F and PBDE were found in fish from high mountain lakes as well as in the lowlands. Things were very different from the concentration of synthetic musk compounds. These substances which came out of detergents and cosmetics were found in higher quantities in fish of the lowlands than in fish in higher regions. The reason is that the lakes in lowland regions are much more contaminated because sewage treatment plants release water which is still contaminated with these substances. An effect which doesn’t exist in higher mountain regions.

Everyday scents have side effects

According to the Swiss scientists, there is only one explanation for the fragrance ingredients and persistent chemicals in fish found in the high mountains: they come directly from atmospheric precipitation and air pollution. Rain, snow, and fog from our atmosphere in these regions are the cause/source for the contamination of the fish with fragrance ingredients. The environmental contamination from the everyday habits of humans cause “perfumed” fish. This development should show everyone the importance of having a critical mind in a scented world.

This year, which is more recent that this 2007 research, there was also an article in Berner Oberland about the fish in Lake Thun not being good for eating due to the chemical contamination.

Author:

Silvia K. Müller, Seit wann benutzen Fische Parfüm, CSN – Chemical Sensitivity Network

Translation: Christi Howarth

Literature:

Schmid P, Kohler M, Gujer E, Zennegg M, Lanfranchi M. Empa, Persistent organic pollutants, brominated flame retardants and synthetic musks in fish from remote alpine lakes in Switzerland , Swiss Federal Laboratories for Materials Testing and Research Laboratory for Analytical Chemistry Dubendorf, Switzerland. Chemosphere, January 2007

Related articles:

• Scented consumer products shown to emit many unlisted chemicals
• Baby Bathwater contains Fragrance Allergens and Chemicals
• Household detergents, Shampoos may harmful substance in wastewater
• Toxic Beauty – What You Don’t Know Can Hurt You . . . In Fact, It Already Is

More attention needed to the disease factor in indoor pollutants

The awareness of the importance of uncontaminated food and pollution-free products in everyday life is growing worldwide. People are striving for a healthy and unpolluted living environment. Especially noteworthy are efforts that have been observed recently in Norway. In this Scandinavian country, efforts are prioritized to protect children, particularly against pollutants and allergens. One of the most active pioneers is Kjell Aas, a retired professor who supports the Norwegian Asthma and Allergy Association, with his profound knowledge. This scientist is anxious to clear ignorance about environmental and pollution-related diseases. He clarifies the facts to the authorities and population in ways which are understandable.

Environmental diseases are not mysteries, but scientifically explainable

For many people it is still difficult to understand that polluted air can also cause health problems or symptoms beyond just the respiratory tract. Research has delivered to us today only fragmentary explanations, but there are some entirely understandable explanations and solid scientific evidence of things not delivered to us, which Kjell Aas tries to make as general knowledge for the public.

The scientist Kjell Aas said, “Medical science has not yet managed to explore all the biochemical mechanisms behind the disease. The same goes for the so-called environmental diseases, such as hyperactivity, migraines, and multiple chemical sensitivity (MCS). To think that these environmental illnesses are something mysterious or inexplicable, or even that they are psychologically conditioned is just incorrect. This can be explained by one or more biochemical reactions. Both the physical and mental functions and activities are regulated by more or less complex chemical processes. The reactions are dependent on the dose and individual tolerance levels.”

Individual biochemistry sets the pace

“From a scientific aspect,” says Kjell Aas, “one must internalize that our internal biochemistry relies on the smooth functioning of a variety of cells with specific receptors and signal systems operating, and upon thousands of enzymes and co-enzymes. These biochemical processes can lead inhibitory and stimulatory mechanisms and integrated “amplifier systems” to gain significant effects.”

Kjell Aas says that the following is important for the public to realize, “Every person is an individual with his/her own individual biochemistry. A few milligrams of cocaine can change the personality and emotional life of an individual,” says the scientist, and continues, “or imagine alcohol having the same affect on the population, but as everyone knows, the tolerance threshold is different for each unique individual.”

The air we breathe daily

The scientist points out in his illustrative design, that adults consume 12 to 15 kg of air per day, and those gaseous chemicals are in the air we breathe, in a more or less high concentrations. Some of these gases combine with others, making them more harmful. These include ozone and other gases that lead to oxidation processes.

In addition, we take in particles in the air we breathe each day without ceasing. We breathe millions of fine particulate matter every hour of every day. These include chemical substances that are associated with the particulate matter which are in a position to pass as easily as breathing gases, and to move fully into blood, lymph and tissue fluid, the researcher points out.

Children are not little adults

Kjell Aas thinks special attention should focus on improving the current situation for children. He justifies this by saying that children can tolerate very little and will get sick easily from chemicals. “We have a variety of cells in our body,” the scientist explained, “all based on chemicals. The chemicals must agree to allow the cells to function properly and then the body will not get sick. ”

The Norwegian elaborated his statement and says, “If an unwanted chemical substances are inhaled, then the chemical balance is upset and so are the cells, and thus we get sick. The cells are blocked by these unwanted chemicals and cannot send out important chemical messengers responsible for our health.”

“Who exactly needs to understand these statements?” Kjell Aas wonders. It is important for all of us to realize the significant consequences for children, in particular, whose bodies are still under construction and development. This enlightenment is exactly what Kjell Aas hopes to awaken in all of us in hopes that we all begin to act accordingly. The Norwegians therefore ask in conclusion that we should internalize the following important fact:

“The air in a room which is acceptable for children, it is also acceptable for adults, but indoor air which is not acceptable for adults, can already make children ill.”

Authors:

Silvia K. Müller, CSN – Chemical Sensitivity Network, Alena Jula, Just Nature, July 1, 2011

Translation: Christi Howarth

Related CSN Articles:

• Oil Spill: Kids in the Gulf
• A new pediatrics to heal sick children and keep well children healthy
• My mother made me fat
• Our planet, our children – How are our children doing?

University of Washington

For Immediate Release

Oct. 26, 2010

The sweet smell of fresh laundry may contain a sour note. Widely used fragranced products – including those that claim to be “green” – give off many chemicals that are not listed on the label, including some that are classified as toxic.

A study led by the University of Washington discovered that 25 commonly used scented products emit an average of 17 chemicals each. Of the 133 different chemicals detected, nearly a quarter are classified as toxic or hazardous under at least one federal law. Only one emitted compound was listed on a product label, and only two were publicly disclosed anywhere. The article is published online today in the journal Environmental Impact Assessment Review.

“We analyzed best-selling products, and about half of them made some claim about being green, organic, or natural,” said lead author Anne Steinemann, a UW professor of civil and environmental engineering and of public affairs. “Surprisingly, the green products’ emissions of hazardous chemicals were not significantly different from the other products.”

More than a third of the products emitted at least one chemical classified as a probable carcinogen by the U.S. Environmental Protection Agency, and for which the EPA sets no safe exposure level.

Manufacturers are not required to disclose any ingredients in cleaning supplies, air fresheners or laundry products, all of which are regulated by the Consumer Product Safety Commission. Neither these nor personal care products, which are regulated by the Food and Drug Administration, are required to list ingredients used in fragrances, even though a single “fragrance” in a product can be a mixture of up to several hundred ingredients, Steinemann said.

So Steinemann and colleagues have used chemical sleuthing to discover what is emitted by the scented products commonly used in homes, public spaces and workplaces. The study analyzed air fresheners including sprays, solids and oils; laundry products including detergents, fabric softeners and dryer sheets; personal care products such as soaps, hand sanitizers, lotions, deodorant and shampoos; and cleaning products including disinfectants, all-purpose sprays and dish detergent. All were widely used brands, with more than half being the top-selling product in its category.

Researchers placed a sample of each product in a closed glass container at room temperature and then analyzed the surrounding air for volatile organic compounds, small molecules that evaporate off a product’s surface. They detected chemical concentrations ranging from 100 micrograms per cubic meter (the minimum value reported) to more than 1.6 million micrograms per cubic meter.

The most common emissions included limonene, a compound with a citrus scent; alphapinene and beta-pinene, compounds with a pine scent; ethanol; and acetone, a solvent found in nail polish remover. All products emitted at least one chemical classified as toxic or hazardous.

Eleven products emitted at least one probable carcinogen according to the EPA. These included acetaldehyde, 1,4-dioxane, formaldehyde and methylene chloride. The only chemical listed on any product label was ethanol, and the only additional substance listed on a chemical safety report, known as a material safety data sheet, was 2-butoxyethanol.

“The products emitted more than 420 chemicals, collectively, but virtually none of them were disclosed to consumers, anywhere,” Steinemann said. Because product formulations are confidential, it was not possible to determine whether a chemical came from the product base, the fragrance added to the product, or both.

Tables included with the article list all chemicals emitted by each product and the associated concentrations, although do not disclose the products’ brand names. “We don’t want to give people the impression that if we reported on product ‘A’ and they buy product ‘B,’ that they’re safe,” Steinemann said. “We found potentially hazardous chemicals in all of the fragranced products we tested.”

The study establishes the presence of various chemicals but makes no claims about the possible health effects. Two national surveys published by Steinemann and a colleague in 2009 found that about 20 percent of the population reported adverse health effects from air fresheners, and about 10 percent complained of adverse effects from laundry products vented to the outdoors. Among asthmatics, such complaints were roughly twice as common.

The Household Product Labeling Act, currently being reviewed by the U.S. Senate, would require manufacturers to list ingredients in air fresheners, soaps, laundry supplies and other consumer products. Steinemann says she is interested in fragrance mixtures, which are included in the proposed labeling act, because of the potential for unwanted exposure, or what she calls “secondhand scents.”

As for what consumers who want to avoid such chemicals should do in the meantime, Steinemann suggests using simpler options such as cleaning with vinegar and baking soda, opening windows for ventilation, and using products without any fragrance.

“In the past two years, I’ve received more than 1,000 e-mails, messages, and telephone calls from people saying: ‘Thank you for doing this research, these products are making me sick, and now I can start to understand why,’” Steinemann said.

-

Steinemann is currently a visiting professor in civil and environmental engineering at Stanford University. Co-authors are Ian MacGregor and Sydney Gordon at Battelle Memorial Institute in Columbus, Ohio; Lisa Gallagher, Amy Davis and Daniel Ribeiro at the UW; and Lance Wallace, retired from the U.S. Environmental Protection Agency. The research was partially funded by Seattle Public Utilities.

–

Reference:

University of Washington, Hannah Hickey, Release: Scented consumer products shown to emit many unlisted chemicals,Oct. 26, 2010

• More information on the project
• More information on volatile organic compounds is available from the U.S. Environmental Protection Agency and the National Library of Medicine

Related Articles:

• The Reckless Self-Interest of the Fragrance Industry
• Secret Chemicals Revaledin Celebrity Perfumes, Teen Body Sprays
• Phthalate Concentrations and the use of Personal Care Products among Pregnant Women
• New Discovery on the Causes of Contact Allergy

Do you remember, around the middle of 2010 when the parents of a young Spanish woman, Elvira Roda, who suffers from severe chemical sensitivity (MCS), asked for help? Do you recall that Elvira was living in a specially prepared, very expensive, pollution-free house where the city applied pesticides?

EMM Blog: Cry for Help – Young Woman in Danger

This seriously ill woman collapsed from the nerve agents, which were sprayed and resulted in putting her into a critical condition. For days she was in the worst health state possible and had to sit in a lawn chair by the sea. The parents tried to stop the city leaders from this application of pesticides, neurotoxic organophos- phates, but it was in vain.

A petition for Elvira, was released worldwide on many MCS blogs and by organizations. People from different countries signed, asking the city officials to refrain from spraying pesticides outside the home of this young woman.

Elvira’s life is in danger again

A day ago the parents of Elvira again asked for help because the city of Alboraya has now begun to spray a herbicide.

Please read her parent’s letter below and support by signing the petition for Elvira.

For Elvira’s sake:

Thanks to everyone who supported Elvira Roda by signing the petition to the Alboraya City Council in Valencia , Spain and asking them not to use chemicals that are harmful to humans and the environment, but instead requesting them to find healthier alternatives.

Our family has tried everything possible to prevent further spraying, but unfortunately today on October 5th, the Alboraya City Council will begin using new fumigation using Plus Roundup (glyphosate), and other environmentally harmful chemicals.

We have requested them to use environmentally friendly, natural alternatives, and asked the city council to inform the public prior to the spraying, but both requests were unsuccessful. We therefore believe it necessary for the health of all, to continue to collect signatures on the petition. We need you. With these efforts, we will certainly succeed.

Please help Elvira Roda! Tomorrow it could be one of you, who needs the help of us all.

For more information regarding Elvira’s situation, please see:

Support for Elvira Roda

To sign the petition, go to >>> Petition to Elvira Roda (sign at the bottom)

Thank you for your support!

Series:  “The Danish MCS Research Centre in the International Field of Vision”

Part III:

Until 2008 it was a common practice in Denmark for local authorities to grant severe MCS sufferers free aid under the service law, section 122, by giving them half mask respirators with activated charcoal filters.

In 2008 a severe female MCS sufferer had her application rejected by the local authorities for this respirator. This case ended at the Danish appeals board, which upheld the rejection on the following grounds:

“…there is no medical documentation for the chronic manifestations of the disease (MCS), its causality, lack of diagnostic criteria and treatment, as well as there is no medical documentation that the mask can sufficiently remedy functionality in her daily life.”

After this incident, a number of MCS patients had their grants for the respirators with filters also suspended by their local authorities, referring to the above ruling.

At the same time, there is no hospital ward in Denmark at all that is committed to examine, diagnose, treat and/or guide this group of severe MCS suffers. All instances refer to the Research Center for Chemical Sensitivities in Copenhagen, which was established in 2006 with minimal grants, but which does not occupy itself with MCS patients, except for using them as test subjects in PhD studies or projects.

The Research Center denies research effects of mask respirators on the MCS population

After the ruling by the appeals board, a great number of MCS sufferers contacted the Research Center to make them document the effects of the respirators with filters for the MCS population, since these are for the time being, the only efficient treatment option for those with MCS, besides the so-called avoidance strategy which leads to social isolation and thus to the possible risk of a subsequent psychological impairment due to isolation from the outside world in the MCS patient’s life. However, this isolation can be reduced by wearing a mask respirator.

To the MCS sufferers’ great astonishment and despair, the Research Center, however, published on its homepage that they were not going to research the effects of half mask respirators with activated charcoal filters on the MCS population. Their arguments, were among others, was that an investigation into the effects of mask respirators on MCS sufferers would require a clinically controlled study, and such a study must be both placebo-controlled and double-blind in order for the results to become reliable and useful.

Thus, the Research Center does not prioritize spending research funds on a study of mask respirators, but focuses instead on researching possible disease mechanisms and other therapy strategies. (1)

In this way, Danish MCS sufferers can see no prospect of anyone obtaining the documentation required by the Danish social system. Thus there is no prospect of being granted mask respirators, the aid which is extremely vital for sufferers – a crazy paradox not worthy of a modern welfare society.

Instead, the Research Center regards electroconvulsive therapy of MCS sufferers as interesting

Simultaneously with the above, the Research Center was following a male MCS sufferer who accepted being subjected to electroconvulsive therapy over six months (at first eight electroshock treatments over three weeks, and after that every two weeks), and on the basis of this one MCS patient’s subjective evaluation of the effect of this electroconvulsive therapy – a ”study” that, of course, was neither placebo-controlled nor double-blind – the Research Center published a scientific article: ”Electro- convulsive Therapy Substantially Reduces Symptom Severity and Social Disability Associated With Multiple Chemical Sensitivity: A Case Report. “Elberling et al. (2) with this conclusion: “In this case, a substantial, positive effect on symptom severity and social disability related to MCS was obtained by an initial somatizing patients course and maintenance treatment. Electroconvulsive therapy should be considered an option in severe and socially disabling MCS, but more studies are needed to evaluate if ECT can be recommended as a treatment for MCS.”

The limited research funds are gladly spent on Mindfulness therapy

Also, the Research Center is planning to spend its very limited funds to research the effects of Mindfulness based cognitive therapy on MCS.

In 2008 the Research Center performed a pilot project study in cooperation with the Center of Psychiatry, The Copenhagen University Hospital, where the title of this pilot project on the homepage of the Copenhagen University Hospital was ”Mindfulness based cognitive therapy of somatizing patients, primarily MCS patients.”

However, this title was in haste changed to: “The Effects of Mindfulness Based Cognitive Therapy with Persons with Hypersensitivity to Fragrances and Chemical Substances,” since MCS sufferers found out that the Research Center, in cooperation with the Center of Psychiatry, considered them mentally ill. Jesper Elberling, the then scientific leader of the Research Center, had meanwhile passed it all off as a “mistake.”

Right now, in continuation of this above-mentioned pilot project, a PhD study is being planned, to investigate the effect of Mindfulness on the MCS population. This is obviously one of those therapy strategies in which the Research Center gladly prioritizes its limited research funding, notwithstanding that Danish MCS sufferers again and again have told the Research Center that mask respirators are an efficient therapy strategy, whereas no one has ever heard or hears about MCS sufferers who have experienced any effects on their MCS from Mindfulness therapy.

Will the Research Center follow its own persistence and demand the placebo-controlled and double-blind studies in its coming research?

In the near future, the Research Center will start up its new study on the effects of Mindfulness therapy on MCS, and we shall then see if the Research Center will actually live up to its own demands and arguments that therapy effects require [DP1] a clinically controlled study, which is both placebo controlled and double-blind, in order for the results to become reliable and useful.

These demands apply hopefully not only for therapy forms, (the effects of which the Research Center does not want to document), such as half mask respirators with activated charcoal filters that are indeed vital to most severe MCS patients, and at the moment are the only treatment strategy that gives MCS sufferers the temporary possibility of being able to move about in the public domain, and which severe MCS sufferers experience as a highly efficient therapy strategy. However this highly efficient therapy strategy lacks – according to the Research Center – ”scientific documentation” which apparently nobody in Denmark wants to obtain.

Author: Bodil Nielsen, Denmark

Translation: Dorte Pugliese for CSN – Chemical Sensitivity Network

Series:  “The Danish MCS Research Centre in the International Field of Vision”

Part I: MCS – Multiple Chemical Sensitivity: A Report from Denmark

Part II:Changes of the international science of chemical sensitivity at the Danish Research Centre for Chemical Sensitivities?

A young chemically sensitive woman is in need of help due to pesticide spraying

Elvira Roda lives in the Spanish region of Valencia and is in great need. Her family and friends are asking for international help. The 35-year-old woman is suffering from Multiple Chemical Sensitivity, MCS. The humidity and heat where she lives means an increased number of bugs and mosquitoes. The officials from her area are using highly toxic organophosphate pesticide spraying in the trees and roadsides (see video). These neurotoxins are very harmful to humans and animals. Elvira’s family drew up a petition on July 1st, 2010 to ask for assistance.

Treatment success from the specialty clinic is now destroyed, instead she faces danger

Elvira was treated at one of the world’s best environmental clinics, the Environmental Health Center in Dallas. Her physical health was stabilized and hope returned to her family. Her case was in the media for some time.

This young woman who is disabled with severe reactions by small traces of perfume has already broken down several times due to highly toxic pesticides that are being applied by the officials outside of her home. These pesticides are particularly dangerous for her because they disable a specific detoxification enzyme and the body then poisons itself.

At the moment Elvira is brought to the sea every day. It is difficult for her because she has severe sensitivity to light among other things. She gets spasms, has immune damage, and suffers from fibromyalgia. She spends the whole day on the beach, not enjoying the sand and the water, but instead staying still in a “bed” due to her bad health. There is no other solution. It is the only way to protect her from being exposed to dangerous toxins. Unfortunately there are no emergency headquarters in Spain for the chemically sensitive or in any other countries for that matter.

Young women in danger

Eliva’s parents have designed her a safe “bubble” where her living space is free of harmful substances, so that this 35 year old woman can normally cope and get along well. She has a sauna there for detoxification so Eliva has a safe haven to live in. She had a safe oasis, but that was before. Now toxic pesticides are sprayed a few yards from the house and the trees are fogged from top to bottom.

The family has informed the authorities of the danger of this pesticide spraying for the young woman. They requested notification of this spraying beforehand. Many don’t understand that these sprays used can penetrate through sealed windows and doors of apartments. These types of pesticides remain active for a long time and they can release gases for several days or weeks.

Not only are those who are chemically sensitive are threatened by these pesticides, but everyone who lives in the environment, especially babies and children whose immune systems and detoxification systems are not fully developed. The main objective of this class of pesticide is to attack the nervous system, but they can also damage the immune system as in the case of chlorpyrifos, which is one type which is known to cause multiple chemical sensitivity.

Petition in support of Elvira Roda

In order to stop this spraying of pesticides, Elvira, and the family have written a petition to the City Council. Anyone can also sign this petition and make a comment. It is important that Elvira receives international assistance. Please post on Facebook, in newsgroups, and on Twitter to help the family spread the news.

Petition for Elvira Roda: http://www.gopetition.com/online/37492.html

You can sign and comment here:

http://www.gopetition.com/online/37492/sign.html

Give Elvira support, strength and hope

Details regarding Elvira’s situation are on the Website Elvira Roda There you can see what her family has built for her. It would be wonderful to write Elvira and her family to give them courage to move forward in any language. English and Spanish are preferred if possible, but your own language can be translated by computer. Anyone who suffers from MCS can relate to the incredible pain Elvira must be dealing with now.

Since Elvira also suffers from electrical sensitivity, she cannot answer herself, but gets all her letters read aloud. Elvira is trying to maintain contact through her website. She writes by hand on paper, and the family and friends help to refresh the page. It can sometimes take a while to get online information, because of the intensive care for the young woman.

All the best for Elvira!

We wish you much strength and hopefully Elvira will assist in the quick understanding on the part of the City Council to move on to non-toxic pest control methods that would benefit of all inhabitants of the Spanish city.

Author: Silvia K. Müller, CSN – Chemical Sensitivity Network, 11 July 2010

Translation: Christi Howarth for CSN

• German Original
• Japanese Translation

Please feel free to add this article to your website or blog. Thank you!

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More articles about Chemical Sensitivity:

• Spanish Workgroup met with Ministry of Health to create a MCS Consensus Document
• Join the project “Multiple Chemical Sensitivity uncovered” / Lola Vicente
• New Housing Non-Profit Forming with Focus on Environmental Sensitivities
• MCS in Japan: A lecture at the House of Representatives of Japan
• The naked Truth about MCS – Multiple Chemical Sensitivity – Including Foreword about German Situation

Following the World Trade Center (WTC) collapse on September 11, 2001, more than 40,000 people were exposed to a complex mixture of inhalable nanoparticles and toxic chemicals. While many developed chronic respiratory symptoms, to what degree olfaction was compromised is unclear. A previous WTC Medical Monitoring and Treatment Program study found that olfactory and nasal trigeminal thresholds were altered by the toxic exposure, but not scores on a 20-odor smell identification test.

To employ a well-validated 40-item smell identification test to definitively establish whether the ability to identify odors is compromised in a cohort of WTC-exposed individuals and, if so, whether the degree of compromise is associated with self-reported severity of rhinitic symptoms.

The University of Pennsylvania Smell Identification Test (UPSIT) was administered to 99 WTC-exposed persons and 99 matched normal controls. The Sino-Nasal Outcomes Test (SNOT-20) was administered to the 99 WTC-exposed persons and compared to the UPSIT scores.

The mean (SD) UPSIT scores were lower in the WTC-exposed group than in age-, sex-, and smoking history-matched controls [respective scores: 30.05 (5.08) vs 35.94 (3.76); p = 0.003], an effect present in a subgroup of 19 subjects additionally matched on occupation (p < 0.001). Fifteen percent of the exposed subjects had severe microsmia, but only 3% anosmia. SNOT-20 scores were unrelated to UPSIT scores (r = 0.20; p = 0.11).

Exposure to WTC air pollution was associated with a decrement in the ability to identify odors, implying that such exposure had a greater influence on smell function than previously realized.

Literature:

Altman KW, Desai SC, Moline J, de la Hoz RE, Herbert R, Gannon PJ, Doty RL.,Mount Sinai School of Medicine, Odor identification ability and self-reported upper respiratory symptoms in workers at the post-9/11 World Trade Center site, Int Arch Occup Environ Health. 2010 Jun 30.