Comments on: German Health System threatens to fail again for another MCS case

By: Susan

Susan — Tue, 15 Dec 2009 16:32:27 +0000

All of the above is what I was told, for my condition, by environmental physicians and a gastroenterologist confirmed the help that ranitidine provides. This is not intended to be medical advice for others.

By: Susan

Susan — Tue, 15 Dec 2009 16:28:43 +0000

One additional thing: the rotation of foods when possible is a good thing, not repeat-eating, when possible, in order to stave off the formation of antibodies. I will keep this lady in prayer, above.

By: Susan

Susan — Tue, 15 Dec 2009 16:27:22 +0000

I have a similar form of MCS, it would appear, as I get an asthma attack from many foods, particularly forming antibodies to foods eaten repeatedly. Potatoes are the one thing I can eat, sometimes for months on end, while allowing my digestive tract and mucous membranes to heal. When they become inflamed, from a significant chemical or mold exposure, it starts the inflammation and then, the food sensitivities. I think this is due to mucous membrane irritation and have been told it is leaky gut syndrome by an enviro doc, that the gut allows allergens to pass through that normally wouldn’t, due to the poor condition of the mucosal tissues. A medication that has very significantly helped with this is Zantac, or in prescription, Ranitidine, I take 150 mg. twice daily. For larger person, it would be 300 mg, but I can’t tolerate that. It is used in helping stomach heal from ulcers also. Then, benedryl, 1/4 of 25 mg tablet, 1/2 hour before eating, in order to avoid the reaction, if unable to eat at all, in order to do so. The benedryl and ranitidine (Zantac, over the counter) were suggested to me by docs familiar with MCS and mold-illness, and without this I doubt I would be alive. Best wishes, hope this is of help.

By: Maria

Maria — Mon, 14 Dec 2009 08:53:14 +0000

Es freut mich sehr, dass dieses Kapitel des deutschen Gesundheitssystem die Runde über den Erdball macht. Denn wie ich eben im CSN-Forum gelesen habe, wurde dieser Blog nun auch ins Japanische übersetzt und veröffentlicht.

Die Welt soll ruhig wissen, wir man mit uns Umweltkranken verfährt.

Wir MCS-Kranke schweigen nicht mehr!!!

http://www.csn-deutschland.de/forum/showthread.php?id=12282

By: Maria

Maria — Mon, 14 Dec 2009 08:51:17 +0000

Es freut mich sehr, dass dieses Kapitel des deutschen Gesundheitssystem die Runde über den Erdball macht. Die Welt soll wissen, wir man mit uns verfährt. Wir MCS-Kranke schweigen nicht mehr!

By: Zlad

Zlad — Sun, 13 Dec 2009 13:24:49 +0000

She and her husband should at least set up a telephone consultation with Dr. William Rea of the Environmental Health Center Dallas (www.ehcd.com). I’m unsure what Dr. Rea currently charges but only two years ago a phone consultation was US$35, well worth it. You can schedule an appointment.
Environmental Health Center-Dallas
8345 Walnut Hill Lane, Suite 220
Dallas, Texas 75231 USA
Phone: 001.214.368.4132
Fax: 001.214. 691.8432
Clinic Hours: M-F 9:00 – 5:00 Central Standard Time (CST)

Good luck!

Zlad

By: Catherine

Catherine — Sun, 13 Dec 2009 03:05:14 +0000

I know an Australian with very severe MCS who found a telephone consultation with Dr Sherry Rogers helpful. There is information about this here: http://prestigepublishing.com/cgi-bin/htmlos.cgi/001879.1.3943026770015444942

There may be other overseas doctors who are knowledgeable about MCS who could give advice to a willing general practitioner.

I’m not a doctor so this isn’t medical advice, but I wondered if a different sort of water might be safer for Geli. I knew someone with extreme problems with water who couldn’t drink water from any filter or distiller but found a brand of mineral water in glass bottles that was safe for her. This made a huge difference to her health.

Best wishes to Geli and her husband,
Catherine

By: Silvia

Silvia — Sat, 12 Dec 2009 16:44:03 +0000

Hi Bob,

Could you explain your treatment a bit more?

Best regards from Germany,
Silvia

By: Bob Payne

Bob Payne — Sat, 12 Dec 2009 16:28:54 +0000

I have this digestive form of MCS and may be able to help with diet and drugs that are helping me.
If someone knows how to contact these people have them get in touch with me, (I do not speak German). I am in several of the MCS and Chemical Sensitivity groups on facebook.
Bob Payne